The Waldenstrom's Weekly

May 12, 2023

Volume 3, Issue 16

"The IWMF staff are very courteous and responsive to my questions.

What a gem they are!"

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- Treatment -

BeiGene Receives New Approvals for BRUKINSA® (zanubrutinib) in China

From Businesswire:


"BeiGene announced the China National Medical Products Administration (NMPA) approved four applications for BRUKINSA (zanubrutinib), the company’s Bruton’s tyrosine kinase inhibitor (BTKi), including two Supplemental New Drug Applications for treatment-naïve adults with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL) and Waldenström's macroglobulinemia (WM), and two Supplemental Applications for conversions from conditional approval to regular approval."


Click here for the full announcement.


- Education -

CancerCare Webinar: Update on COVID for People

Living with Cancer & Their Caregivers

May 22, 2023, 1:30 – 2:30PM Eastern Time

Topics Covered

  • How to Protect Yourself & Your Loved Ones from COVID, Omicron & Delta Variants
  • COVID Vaccines & Booster Vaccines
  • Other Vaccines - Flu, Pneumococcal & Shingles Vaccines
  • COVID & People Living with Cancer
  • Where to Find Reliable Information Regarding this Pandemic & Its Variants
  • How to Protect Yourself, Loved Ones & Children from COVID & Its Variants
  • The Increasing Role of Telemedicine/Telehealth Appointments
  • How to Prepare for Your Telemedicine/Telehealth Appointments, including Prepared List of Questions, Follow-Up Appointments, Quality-of-Life Concerns & Discussion of OpenNotes
  • Working Closely with Your Health Care Team about Your Wishes & Health Care Directives
  • Tips to Manage the Practical, Emotional & Financial Stresses Related to COVID, Omicron Variants & Cancer
  • Self-Care & Stress Management Tips
  • Questions for Our Panel of Experts
Register Here

- Support -

TODAY! Sound Meditation for WM

2:00PM U.S. Eastern Time

Enjoy this free monthly offering today! Relax to the sound of Ann's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune. 


Contact [email protected] for the Zoom link!

International Young WM Support Group Meeting

Monday, May 15th at 7:30PM U.S. Eastern Time

The International Young WM Support Group will be having a meeting for patients and caregivers under the age of 50. Attendees will join Co-Leaders Ryan and Deborah on Zoom for a caring and sharing session, which will last approximately one hour.

Monday, May 15th, 2023

7:30PM - 8:30PM U.S. ET

 

To join the mailing list for this group, contact Shelly at [email protected].

The Patient Access Network (PAN) Foundation:

WM Fund OPEN for Eligible U.S. Patients!

The PAN Foundation is helping patients afford their out-of-pocket costs with annual grants of $7,000.

 

We know it can be difficult to afford the out-of-pocket costs of treatment for WM. If you’re looking for more financial assistance resources to help with your out-of- pocket treatment costs, we encourage you to learn more about our friends at the PAN Foundation.

 

The Patient Access Network (PAN) Foundation is a national organization that helps underinsured patients with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs. You can find more information about their WM fund below.

 

About PAN’s WM fund

 

PAN’s WM patient assistance fund provides $7,000 per year in

financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with WM treatment. To qualify for funding, patients living with WM must meet the following eligibility

requirements:

 

  • Be getting treatment for WM.
  • Reside and receive treatment in the U.S. or U.S. territories
  • Be prescribed a medication or product that is listed on PAN’s list of covered medications
  • Have an income that falls at or below 500% of the Federal Poverty Level.
  • Have Medicare health insurance that covers the qualifying medication or product.

 

Review the full eligibility criteria HERE and check if you qualify.

 

How to apply

 

It’s easy to apply and you’ll learn if you’re approved for a grant immediately. Visit PAN’s online patient portal to get started and check out their portal how-to guides for step-by-step instructions on common tasks like creating an account and applying for assistance. You can also reach PAN by phone at 1-866-316-7263, Monday through Friday, 9 a.m. to 7 p.m. Eastern Time.

WM Community Corner

Patient Empowerment Network (PEN) recently featured Lu Kleppinger's WM patient story in their newsletter. Check it out here.

Lu's original IWMF Story of Hope can be found here.

The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  
IWMF is dedicated to supporting and educating everyone affected by WM to improve patient outcomes while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com
IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | [email protected] | 1-941-927-4963
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