Greetings!
We are finally approaching the end of 2020. I don’t think any of us are sad to see this year end. It has been extremely challenging and stressful for everyone. So many have lost their jobs and unfortunately, many others have lost their lives to COVID. Children have had their lives turned upside down.
We are aware of only a couple of SDS patients who have gotten COVID and they had mild cases.
Our SDSF board has been aware of the additional stress our families have been experiencing. We have tried extremely hard to support families, as much as possible. To this end, our media team, Nicole, Michelle, and Orva have organized 20 broadcasts of SDSF Live. They had 12 medical professionals as guests, and we reached 5000 families in 10 countries. Great work ladies!
I want to also thank all of our board members who have taken time from their own families to help our organization.
I wish each of you a healthy and blessed holiday season, and a much better 2021.
SDS STRONG!
Joan Mowery
President
Shwachman-Diamond Syndrome Foundation
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This past summer, Camp Sunshine sent out their Camp Sunshine at Home boxes. Families were able to come together and make projects, puzzles, and make their |
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own wish boats. While we all missed being at Camp Sunshine this, year, this was a great idea and brought a little bit of the camp magic to our homes! |
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Get Your SDSF Holiday Ornament!! |
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There is a small number of the limited edition Holiday Ornaments left!
They are a great gift for your doctors, family, friends, teachers, and care givers!
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Thank you everyone for helping make SDSF Live such a success.
Our upcoming scheduled shows include:
January 3, 2021 at 6:30 pm CST - Dr. Coleman, Oncologist
We welcome any suggestions for future shows. Please send any ideas to [email protected]
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We are very proud to announce that SDSF has been awarded a grant to compile, expand, and publish a new updated SDSF Glossary.
We have been working with members of our Medical Advisory Board to ascertain that it is as complete and comprehensive as possible.
We will keep you updated as to when it will be published.
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Join Roman and our diabetic research study to determine if you might develop diabetes. See the information below.
Click the button below to inquire about the study.
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10th Annual SDS International Congress
Rescheduled to March 22-25, 2021
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Have you ordered your latest SDS Strong swag? You can find the link to order your new Tumbler below.
Hurry! These are limited quantity items, and we don't want you to miss out!
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We know that this is a challenging time for so many. We are asking that if you set up an online fundraiser for a birthday or special event or if you order from
Amazon Smile, please set Shwachman-Diamond Syndrome Foundation as your charitable organization. Every little bit helps us fund research so help find a cure for SDS!
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Botsfordfurt, Nevada
South Alene, Wyoming
Arlington, VA
Covington, Louisiana
East Elody, South Carolina
West Alta, Oregon
Spencerton, Oregon
Great Britian
Winter Garden, FL
Galveston, TX
Queensland, Australia
Christ Church, New Zealand
Ontario
Melbourne, Australia
Italy
Whichita, KS
Westfield, MA
Porto, Portugal
Simi Valley, CA
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Thank You For Your Donations |
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Donations received between September 1, 2020 - December 10, 2020 |
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Jacob DeBoer
Allison Bertuch
Julie Cunningham
Gordon Cole
Lisa Edick
Elizabeth Todisco
Randall Keyes
Annee Duprey
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PayPal Giving Fund
Your Cause, Pacific Gas & Electric
United Way Greater Niagara
Dell Giving
Benevity
United Way of Rhode Island
Charities Aid Foundation of America
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In Honor of Marissa Avroch - Rose & Frank Canonico, Catherine DiFalco,
In Honor of Jess Bodron & Camden Kilcrease - Joni & Tim Bodron
In Honor of Camden Kilcrease - Angela Simoneaux
In Memory of Catherine Luken - Kathleen Schenkel, Anita Berwanger, Jack Hoefker, MaryAnn Neltner, Joan Mowery, St. Pius Chior
In Honor of Scott, Meagan and Jonathan Miller - Carol Reed, Ann Macke
In Honor of Collin Brown - Morris Salter, Doris Cox
In Honor of Chilton Price - Linda Price
In Honor of Elizabeth Cole - Susan Davis
In Honor of Anthony Gregoretti - Donald Murphy, David Vogt
In Memory of Patsy Stewart - Gary Stewart, William Harrison, Susan Wilson, Sharon Frasco, J.W. Leonard,
In Memory of Bob Fugiel - Kathleen McGinnis, Celeste Cooper, Patricia Smith, Judd Glow, Helen Grosshans, Nancy Labelle, Jo Clay, Theodore Wagner, Paul Bjekich, Anne Rodgers, Carol Chany, Elena Gottreich, Marilyn Ostergaard, Mary Ann Suero, Ellen Zerega, Nancy Odon, Douglas Altenberg, Denise Lowry, Larry Walsh, George Christy, Richard Edwards, Kathryn Hoffman, Jason Housch, Nate Blume, Mary Ryholm, Brent Wilson, Paul Wolf, Anne Grosshans, Jason Stewart, Betty Hartman, Ruth Tague, Brian Nash
In Memory of Heather Pendergast - Thomas Pendergast
In Honor of Wade Wachter - Darlene Petzoldt
In Honor of Keller Wilson - Tonya Spires, Stacy Spires, Alison Spires
The Many Supporters Through Facebook Fundraisers
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Thank you for your monthly donation
Andrea Wolf
Indro Hoffmann
Maria Hall
Keung King Man James
Lisa Kilcrease
Anthony Porrata
Sylvia Kuleszo & David Misenhimer
Jason Huttinger
In Memory of Michele Mowery - Joan & Greg Mowery
In Honor of Jonathan and Joseph Wall - Joyce Wall
In Honor of Jake Walden - Julie Walden
In Honor of Wade Wachter - Jennifer Wachter
In Honor of Marissa Avroch - Dianne Moschetta
In Honor of Keller Wilson - Stacy Spires
In Honor of Scott, Meagan, Jonathan Miller - Pamela Miller
In Honor of Riley Laber - Mary Balint
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SDSF would like to encourage everyone to raise funds to support research and the Foundation. We have had families raise money through letter writing campaigns, school dances, corporate matching gifts through their employers, golf tournaments, physical competition events, Super Bowl parties and more. |
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Shop The SDSF Online Store |
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Did You Get Your SDSF Car Magnet Yet? Click the Link Below to Get Yours and see what other SDSF Merchandise We Have! All Proceeds Support Finding a Cure for SDS! |
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Shwachman-Diamond Syndrome Foundation |
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FOUNDER: Joan Mowery 1994
BOARD OF DIRECTORS
Joan Mowery, President
Mary Balint, Secretary
Bryan Sample, Treasurer
Christian Del Ré, Communications Chair
Stephanie Gregoretti, Fundraising Chair
Orva Jurado, Tech Expert
Nicole Shen, Membership Chair
Jenni Wachter, Webmaster
Carolina Cordova
Michelle Grenell
Savannah Lillywhite
Scott Miller
Pamela Miller, Executive Director
Other Amazing Leaders
Joyce Wall - Anna Angel Basket Coordinator
Maura Donahue - Advisor to the Board
Jess Johnson
ATTORNEY: Ann Bodewes Stephens, Herzog Crebs
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Have an article, update, or fundraising activity you would like to share in a future newsletter? Email your story to:
We would love to hear from you and share your stories!
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Shwachman Diamond Syndrome Foundation
888-825-7373
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