Vol. 27, No. 2 | May 2025

IN THIS ISSUE

  • All Eyes on the Federal Fight for Medicaid
  • Policy Brief: How Medicaid Work Requirements Overlook the Labor of Family Caregiving
  • New Fact Sheets and Infographics: Respite Care and HCBS
  • The Dismantling of the Administration for Community Living (ACL)
  • Leaked Department of Health and Human Services (HHS) Draft Budget

All Eyes on the Federal Fight for Medicaid

     

Amid disagreements among Republicans around what is too far, or not far enough in cuts to Medicaid and other safety net programs, the House Budget Reconciliation Bill is being pushed through various steps towards final approval. House Budget Committee Republicans advanced draft text for a reconciliation bill late Sunday May 18th. The 1,116 page bill was taken up again in the House Rules Committee, at 1 am on Wednesday, but here it faced more contention with House Freedom Caucus members calling for Medicaid work requirements to kick in sooner, clean energy subsidies to be eliminated, and a reduction to the federal share of some Medicaid costs. The rules committee is still debating the package and this afternoon Speaker Johnson and President Trump met with members of the House Freedom Caucus to try to reach agreement and stay on schedule.  



Speaker Johnson has voiced a plan to hold a full floor vote before dismissal for the Memorial Day Recess and is not sure yet if that will be tonight or tomorrow morning. Live updates are being reported on Politico here. On this timeline, the Senate would likely vote on their reconciliation bill in mid-June, with the House and Senate working out any differences, if needed, in June-July.  

 

The marked-up, advancing, budget includes proposed cuts that would be the steepest cuts in Medicaid history--$715 billion over the next 10 years.  Most of these cuts are through work and reporting requirement, repealing the Biden Administration’s rule simplifying Medicaid eligibility and renewal processes, and establishing a moratorium on new or increased provider taxes. Read more about the details and impact here.  


  • Find the number to call your representatives.  
  • Caring Across Generations has a tool that caregivers can use to record and submit stories about the ways that they use Medicaid (examples include adult day care, payment for home care hours—including to family caregivers). 

Policy Brief: How Medicaid Work Requirements Overlook the Labor of Family Caregiving

 

Medicaid work requirements would harm family caregivers who have stepped away from the workforce to provide full-time care. The National Alliance for Caregiving published a policy brief this month that highlights how proposed work requirements for Medicaid could negatively impact family caregivers who provide critical support across the lifespan. 

 

Policy Brief 

New Fact Sheets and Infographics: Respite Care and HCBS

  

The National Alliance for Caregiving (NAC), in support of the Act on RAISE Campaign, created this toolkit as a resource to help advocates, caregivers, and partner organizations explain the role of Medicaid in supporting family caregivers. 

The Dismantling of the Administration for Community Living (ACL)

 

Late March, the US Department of Health and Human Services (HHS) announced a dramatic restructuring. The announcement specifically called for the Administration for Community Living (ACL), which since 2012, has administered many programs for older adults and people with disabilities to remain healthy and independent in the community, to be dissolved into other offices within the Department. As part of this move, a significant number of ACL staff were laid off and five regional offices were closed.

  

Read more: https://www.statnews.com/2025/04/17/administration-for-community-living-acl-hhs-reduction-in-force-congress/

Leaked Department of Health and Human Services (HHS) Draft Budget

  

While details about the restructuring of the Health and Human Services Department were scant in the press release, a few weeks later a draft budget for the Department of Health and Human Services (DHHS) was leaked to reporters on Wednesday, April 16. The first page included a very grainy organization chart that shows ACL programs (including Older American Act programs) being divided up between the Administration for Children and Families, and the Centers for Medicare and Medicaid Services (CMS).  


The memo proposed eliminating some programs entirely, including:  

  • Preventive Health Services 
  • Elder Falls Prevention 
  • Lifespan Respite Care 
  • Long-Term Care Ombudsman 
  • Chronic Disease Self-Management Education 
  • Elder Rights Support Activities 
  • Elder Justice/Adult Protective Services 
  • Aging & Disability Resource Centers 
  • State Health Insurance Assistance Programs 
  • State Councils on Developmental Disabilities  
  • Developmental Disabilities Protection and Advocacy  
  • Developmental Disabilities Projects of National Significance  
  • Paralysis Resource Center 
  • Limb Loss Resource Center 
  • Voting Access for People with Disabilities

  

The president’s May 2nd recommendations on discretionary funding levels for fiscal year 2026 don’t mention these specific cuts in the major funding changes chart (HHS is pages 9-14).

Credits

Editor: Jenna Shankman 

Contributors: Kathleen Kelly 

Production: Calvin Hu, Al Martinez

  

Send your feedback or questions to jshankman@caregiver.org or info@caregiver.org. 

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