Vol. 27, No. 3 | July 2025

IN THIS ISSUE

  • The Big Beautiful Betrayal
  • Older Americans Act Programs Will Stay Together in the Health and Human Services Restructure
  • Older Americans Act Reintroduced
  • New York State Releases Master Plan for Aging
  • Long Term Services and Supports User Dashboard Released by ATI Advisory with Support from the SCAN Foundation
  • PBS “Caregiving” Documentary Produced by Bradley Cooper

The Big Beautiful Betrayal

     

By now you have likely heard that President Trump’s “One Bill Beautiful Bill” narrowly passed both the House and Senate and was signed by the President on his orchestrated July 4th deadline. Advocates pushed back hard against this bill, calling it the “Big Beautiful Betrayal” because of its steep cuts to healthcare and food assistance programs.

  

The bill includes a work requirement (at least 80 hours a month) for most individuals aged 19-64 enrolled in Medicaid. While there are exceptions for guardians of children under 13, guardians of children with disabilities, and people with disabilities, there is no recognition of other types of family caregivers who are not currently working because they are providing care. Work requirements go into effect January 1, 2027, so it isn’t immediate. States will need to put in place infrastructure and determine what this reporting will look like.  Additionally, starting December 31, 2026, states must redetermine Medicaid eligibility more frequently – every 6 months, rather than once a year – for individuals enrolled in Medicaid Expansion (with an exemption for people who receive SSI benefits).

  

The bill also marks the expiration at the end of the 2025 calendar year of the enhanced ACA (Affordable Care Act) Tax Credits, which will lead to increases in monthly premiums for individuals and families on ACA health plans. It includes changes and restrictions on who is eligible for ACA plans and how they may enroll. Between the changes to Medicaid, and to the ACA , the Congressional Budget Office estimates 16 million people will lose their health insurance by 2034.

  

Notably, the bill reduces the amount of federal funding given to states for Medicaid. This budget loss is a huge blow to state Medicaid budgets, with an expected reduction in services. Home and Community Based Services are considered “optional” under Medicaid, which may mean that states choose, or are forced to choose, cuts to these services first, ironically pushing more individuals into costly institutional care settings. The other major concern, sounded by the American Hospital Association and other healthcare groups, is that that hospitals and clinics will be impacted financially, and may be forced to close, especially in rural communities. This second point garnered concern with some Republican representatives from rural areas, but not enough to change their vote, especially after they were appeased with a limited $50 billion rural health fund promised to offset this.

  

We will continue to share news about this bill’s impact as more unfolds.  

Families USA Summary of Provisions Related to Medicare, Medicaid & Affordable Care Act

Older Americans Act Programs Will Stay Together in the Health and Human Services Restructure

  

In supplemental budget materials released by the Department of Health and Human Services and the Trump Administration, USAging reports “all of its OAA [Older Americans Act] programs and many other aging and disability programs previously administered by the Administration for Community Living (ACL) will move to a newly renamed Administration for Children, Families and Communities.” This is a departure of a leaked budget draft, which split the programs between the Administration for Children and Families and CMS. Keeping the programs together allows for better coordination of services and collaboration between the aging and disability networks. Importantly, “the final President’s budget does not include ANY funding cuts to OAA, the State Health Insurance Assistance Programs (SHIPs), Aging and Disability Resource Centers or Adult Protective Services,” which were all slashed in the leaked version, covered in our last Policy Digest issue.  

 

Read more in USAging’s press release here.

Older Americans Act Reintroduced

 

In June 2025, ten bipartisan US Senators reintroduced the Older Americans Act (OAA) Reauthorization Act. The legislation would reauthorize Older Americans Act programs, including caregiver supports, through fiscal year 2030. According to the press release the bill “makes[s] improvements to promote innovation and flexibility, strengthen program integrity, and better support family caregivers and direct care workers. The bill also takes steps to better serve Tribal seniors and those with disabilities in their communities.”   

New York State Releases Master Plan for Aging

 

After 18 months of meetings, and input from more than 430 stakeholders, the New York Master Plan for Aging (MPA) Council released their final report June 30, 2025.  The MPA Final Report contains over 100 proposals directed towards all levels of government, the social sector, and private enterprise. It includes nine pillars, including Pillar 1: Informal Caregiver and Workforce Support and Modernization of Community Based Aging Network Service. Pages 36-74 outline proposals to support both paid and family caregivers, including a Caregiver Coordinating Commission, a Statewide Caregiver Peer Support System, and proposals to make workplaces more supportive of working family caregivers. 

Long Term Services and Supports User Dashboard Released by ATI Advisory with Support from the SCAN Foundation

 

This dashboard shows how 7.2 million Americans accessed long-term services and supports (LTSS) in 2022, including Medicaid home- and community-based services and institutional care. It includes interactive, state and county-level maps and charts to help improve these programs and meet community needs.

PBS “Caregiving” Documentary Produced by Bradley Cooper

 

One of the latest prominent examples of caregiving’s recognition in mainstream media is Bradley Cooper’s documentary, “Caregiving.” This nearly two-hour film, created with Caring Across Generations and other partners, follows the personal stories of family caregivers of older adults, people with chronic or acute illness, and children with disabilities. It takes an intimate look at the immense work of caregivers, as well as the gaps in support for family and paid caregivers. The documentary outlines the history of current policies (starting with President Roosevelt and Francis Perkins coming out of the Great Depression), and programs that were proposed but never passed.

  

Watch the documentary for free at PBS.org now through November.

Credits

Editor: Jenna Shankman 

Contributors: Kathleen Kelly 

Production: Calvin Hu, Al Martinez

  

Send your feedback or questions to jshankman@caregiver.org or info@caregiver.org. 

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