Chromosome 18 Registry and Research Society

UPCOMING EVENTS AND CALENDAR
CHROMOSOME 18 CLINICAL RESEARCH CENTER
CAMP CHROMOSOME 18 ANNUAL SUMMIT 

Important Links:

Silent Auction 
Family Table Tickets
VISIT OUR BLOG

June Happenings!

Upcoming Virtual Events

Camp Deadlines


Camp and Nights Out registration will be closing July 1st! There will be no on site Camp registration. Complete your Camp registrations now!

CAMP REGISTRATION
NIGHTS OUT  

Want to Volunteer at Camp? Volunteer opportunities are still available at Camp! Sign up today for your volunteer spot!


We are in need of silent auction items for Camp! You can still donate even if you are not attending Camp. Want to donate or have a silent auction item? Fill out the form today!

Camp Schedule Available here!


We'll be using GroupMe for all communications throughout Camp. Stay up-to-date, ask a question, share your location, and more.

UPCOMING EVENTS

Member Highlight

Chromosome 18 Clinical Research Center

ATTR-CM and Chromosome 18

READ THE FULL ARTICLE

Research Center

This month, the Registry gave $40,000 to the Chromosome 18 Clinical Research Center to continue the vital research that takes place everyday. These funds help support making sure our families get the continuing help that is so needed.

Welcome to the Chromosome 18 Family!

Jonah Cordova, Ring 18, Philippines

Louise Taylor, Tetrasomy 18p, Northeast

Ashlyn Huggett, Trisomy 18, Texas Area

Sarah Kruse, Ring 18, Northwest

Destiny Baker, Ring 18, Mid-Atlantic

Meg Affleck, 18q-, Southeast

Debora Hermes, 18q-, Brazil

Chromosome 18 Golf Tournament - Save the Date!

Greetings from C18 Australasia!

It was great to see some of our Chromosome 18 families catching up for lunch in Melbourne on the 28th May. A huge thanks to The Brighton Hotel for making everyone feel so welcome. Chromosome 18 Australasia endeavors to connect families to support each other. If you’d like to know more about what's happening in your region, please email us at admin@chromosome18.org.au  


-Tracey Healy, President for Australasia

Thank you and Happy Birthday to Laura Hill, Lisa Ann, Jennifer Green, Erin Perron, Shauna Evans, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers! 

June Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with Bea and Kendall Powell to talk about Camp, the sibling track and what to expect at Camp!

This Facebook Live is in two parts. Part 1 and Part 2.

Freedom to Ride!

In April, my husband Todd and I entered our son Easton (18q-, autistic) into Friendship Circle’s Great Bike Giveaway. This contest provides an opportunity to win a specialized bike as well as provides a fundraising platform for friends and family members. Easton has difficulties with most outside activities due to his global delay and low muscle tone. He is unable to petal a bicycle by himself and we thought a tandom bike that my husband and I could help petal, would be amazing for him! We were truly blessed and excited to be a part of the Great Bike Giveaway which is held once a year.

Contact Us

210-657-4968

office@chromosome18.org

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