The Chromosome 18 Registry and Research Society

April Happenings!

2024 Annual Report

Detailed in our 2023 Annual Report is a comprehensive picture of everything that happened in 2023 and, in our effort, to better serve you and too be fully transparent in all of the organization's activities, financials' and Mission.

Thank you to our members, donors, and community partners for making 2023 one of our most successful years ever for Chromosome 18!

READ HERE

Starfish Dash 5K & Health Fair

The Starfish Dash 5K Run/Walk was a success this past weekend! Thank you everyone for coming out for this fun event and thank you to all of our families who did a virtual Starfish Dash! We couldn't of done this without you!

DASH PHOTOS

Upcoming Events

EVENTS

First Time Conference Scholarships Closes May 5th!

Families who have not attended conference and are interested in attending can apply for a conference scholarship! One family of up to 5 members will be awarded this scholarship. Scholarship applications are open now and have extended to May 5th. APPLY TODAY!

SCHOLARSHIP APPLICATION

Dr. Cody and Elizabeth on Great Day San Antonio News

Dr. Jannine Cody and Elizabeth Cody had the wonderful opportunity to appear on Great Day San Antonio News to talk about Chromosome 18 and to share out our Starfish Dash! You can watch the full video below.

WATCH HERE

Italian C18 Family Visits the Clinical Research Center

European Board member Sarah Russotti who is based just outside Rome, Italy fulfilled an ambition to visit the Chromosome 18 Clinical Research Center with her family. She was very impressed by everything that is happening and has gone back home and will be setting up a virtual tour in Italian for the families, getting a Q & A zoom call with Dr Jannine Cody with a translator available. Thanks, Sarah, for coming and visiting us!

2024 Conference Registration is open!

Conference registration is open! Find out more below and register today for conference in Charlotte, NC!

Australasia Virtual Event

Join Chromosome 18 Australasia for a virtual gathering in the lead up to Mother’s Day. This online gathering will be a place for our Australasian mums to catch up, share stories, and connect with other members of our community. We look forward to seeing you on Sunday May 5^th at 5pm AEST.

Welcome to the Chromosome 18 Family!

Pam Anderson, 18q-, Rocky Mountains

Jon Mullen, 18q-, Texas Area

Leighann Stockill, 18q-, Canada

Michelle Suttles, 18q-, Great Lakes

Melinda Greer, Trisomy 18, Southeast

Mary Taber, 18p-, Southwest

Cheyenne Glover, 18p-, Southeast

Jill Nasso, 18p- Southeast

Sara Oliveria, 18q-, Portugal

J Darling, Tetrasomy 18p, United Kingdom

Fernando Cruz, Trisomy 18, Brazil

Brett Wilson, Tetrasomy 18p, Great Plains

Ashley Marley, 18p-, Texas Area

Laura Fearn, 18p-, United Kingdom

Betty Thomas, 18p-, Australia

Chromosome 18 Clinical Research Center

Current Projects and Research Updates

WATCH THE FULL VIDEO

April Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with Jacqueline and Alex Ngo, Leo's parents, to talk about how they participate in a virtual Starfish Dash every year!

Thank you and Happy Birthday to Kelly Cochran, Kristen Earl, Neale Parker and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers!

210-657-4968

office@chromosome18.org