November Newsletter!

World Chromosome 18 Day is Coming Up!



Missed the in-person Conference? Then this is an ideal opportunity for you to come and join in a day of virtual connections and hear from leading medical experts in the field and join them in live question and answer sessions. See the provisional schedule here.

Join us December 7th for World C18 Day — a free, virtual mini-Conference!

Connect with families and friends worldwide

• Learn from the C18 Clinical Research Center’s team of experts with over 50+ years combined experience with Chromosome 18 families.
• Ask questions and join syndrome-specific breakout sessions
• Come and visit with Santa for a story and holiday wish list
• End the day with our fun holiday dance party!

Don’t miss this special online event — see you December 7th!

Other Upcoming Events

Office will be closed for the holidays - November 27th & 28th, December 25th & 26th, and January 1st

World Chromosome 18 day - December 7th

Facebook Live with Chromosome 18 Staff - December 18th

New Family Resource and Intro Call - January 14th at 7pm (CT)

Starfish Dash 5K Run / Walk & Health Fair San Antonio, TX & Virtual Event - April 25th

Your Year-End Gift Sparks Year-Round Hope

As we celebrate the close of a remarkable year for our Chromosome 18 families, we invite you to pause and reflect on what this community means to you — the research that brings answers, the events that bring joy, and the connections that bring families together when you need it most.

Your generosity has the power to change lives. As you consider your year-end giving, please remember the vital work that continues every single day — supporting your unique family and thousands more around the world.

Every gift, in any form — crypto, DAFs, stocks, property, credit card, or even an old-fashioned check — fuels hope, advances research, and keeps our families connected.

Thank you for being part of our important Mission to our Chromosome 18 Families. Together, we create brighter tomorrows.

Pennies for Perri - Save The Date

Attention Families in California, we have an event in your area in the new year! Join us for our 4th Annual Pennies for Perri on March 7th, 2026, at the Harborside Restaurant & Grand Ballroom in Newport Beach, CA.

Hosted by the Poggio family and they are proud advocates of all individuals affected by chromosome 18 conditions, including their 3-year old daughter, Perri. Please join us for a sophisticated and fun evening in a beautiful location and food & beverages will be included in the price of your tickets. Some great raffle baskets and & silent auction items will be available and see some of the highlights from last year's event here.

Join a Committee!

Committees are a wonderful way to give back to the Chromosome 18 Registry, and we’re excited to share two opportunities for you to get involved. See below for details on how you can join and make a meaningful impact!

2026 Conference Committee

It takes a Chromosome 18 village to make our largest in-person gathering of the year unique and special each city we visit. In 2026 under Conference Chairs Claudia Traa and Ashley George they are looking forward to welcoming you to San Antonio from July 12-15th 2026. We need volunteers from around the country to join the committee and to plan events, merchandise, outings, auction's etc. Reach out to office@chromosome18.org if interested.

AI Committee

This brand new Committee chaired by Liz Woodfield & Jaron Sheppard is forming to strategically see how AI will be beneficial for our Chromosome 18 families. If you have a unique knowledge or perspective that you feel might be useful, please reach out to office@chromosome18.org. 

New Families

It's been a big year for new families! Let's give a warm welcome to everyone who has joined us since July! Click the button below to see a complete list.

Chromosome 18 Clinical Research Center