Chromosome 18 March Happenings
April 9th - The Starfish Dash 5K Walk/Run & Health Fair! Join us for this official Fiesta event to raise awareness for Chromosome 18. The event is free for the whole family!

April 18th - Facebook Live at 6pm CT with Dr. Cody as she gives updates on the Chromosome 18 Clinical Research Center.

April 26th: GI Issues with NP, Erica Annoti. Join us at 6:30pm CT for this member Zoom event as Erica talks about Gastrointestinal Issues.

Register here: bit.ly/c18upcomingevents
Happening this Month
We are looking forward to Chromosome 18 Annual Family Conference coming up July 7-9th, 2022 in San Antonio, Texas. We can't wait to share more information about the conference with you and your family. We hope that you can join us!

Conference registration opens on April 1st!
We are excited to offer the Starfish Dash IN-PERSON & VIRTUALLY on Saturday, April 9th, so people can participate across the globe! We are looking for teams, volunteers, and sponsors. Please click the link below to start a new team, sign up to volunteer, and/or make a donation. Thank you!!
Starfish Regional Gala Nebraska- Feb. 26, 2022
“This is my why,” Erica said. “Obviously my why is my family, but I want to make a difference and this is my difference. Raising money for kids because there are families out there like Lilly’s who don’t have an answer yet, they don’t have a diagnosis, they don’t have a support group." - Erica Johnson
Chromosome 18 Clinical Research Center
The Chromosome 18 Clinical Research Center is excited to share our series of FAQ videos! Created by Dr. Jannine Cody, this collection of ten videos answers some of the most common questions asked about chromosome 18 conditions. Check out the 10th video below:
Thank you and Happy Birthday to Mihai Bostan, Jodi Hight, Kristen Yerys, Tracy Stevens (in honor of Evan), & Karen Kreuzer Palmer for celebrating their birthdays with Chromosome 18 through Facebook Fundraisers! 

Thank you to Mary Lollis, Scott Lollis, Nick Maumus, Liz Woodfield & Chris Carlucci, Stacy Gallardo, James Borello & Co., and HEB for your very generous donations!

March New Member Highlight: The Breytenbach Family
Upcoming & Past Events
Click here to read about the 2022 Starfish Gala!

Click here to see our March Facebook Live with Genetic Counselor, Dena DNA.

Click here to see more photos from Fiesta Media Day!
Welcome to the Chromosome 18 Family!
Hill Family, 18q-, Australia
Sanderson Family, Great Britain
Carmody Family, Ireland
Gustafik Family, Great Plains
Green Family, 18p-, Mid-Atlantic
Mondal Family, Trisomy 18, India
Grimes Family, Trisomy 18, Texas Area
Uwadi Family, Canada
Farabee, Mid-Atlantic
Taylor Family, Southeast
Toy Family, Phillippines
Brown Family, Texas Area
Ames Family, 18p-, Great Plains
Harper Family, South Central
Rodriguez Family, Trisomy 18, Southwest
Camacho Family, Guatemala
Obenholtzer Family, 18p-, Southeast
Deduyo Family, 18q-, Southwest
Franchi Family, Mid-Atlantic
Holmes Family, Trisomy 18, Southeast
Alling Family, 18q-, Northeast
Upcoming Calendar Events



July 7 - 9, 2022 - 27th Annual Family Conference in San Antonio

October 7, 2022 - 18th Annual Golf Tournament in San Antonio

October 23, 2022 - Starfish Dash in Fort Worth
 
Planning an event? Contact office@chromosome18.org to have the event listed in our newsletter and on our website!
The Chromosome 18 Registry & Research Society | www.chromosome18.org