Chromosome 18 May Happenings |
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June 4th - Virtual Family Game Night from 4-6pm CT. Grab your own snacks and get ready to have some fun with your family and friends over Zoom.
June 9th - Self Advocate Girls Night In at 8pm CT. Syndey Alper will be leading this Zoom Event! Its going to be a great time to catch up with old friends and meet new ones!
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Many families say that attending the conference is a "life changing experience," and whether it is your first or twentieth time, we can't wait to see you there!
IMPORTANT DATES
June 7th - Reduced cost stipend registration and childcare registration closes.
June 7th - Order conference merchandise by June 7th to get it in time for conference
July 1st - ALL conference registration closes. No registration will be allowed at conference
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Order your Conference Merch by June 7th in order to receive it in time to wear at conference! You can pick it up at conference (free of charge) or have it mailed directly to you for a flat rate of $11 (shipping to US mainland only).
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The Starfish Dinner & Dance is the last night of the conference Saturday, July 9th. Join us for our reception, celebration dinner, all-out dance party, and silent auction. Raise or sponsor at least $1,500, and you’ll be able to pick your choice of table (that seats 10 people) in the ballroom for the Starfish Dinner & Dance!
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Click on the image above to register for each event for conference! Must register by July 1st (no onsite registration at conference).
If you would like to volunteer at the conference, please click here! We need help with check-in, registration, merch, silent auction, the Club 18 room and more!
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Help with us our Google Reviews! |
If you have just a few minutes to help us with our Google presence, that would be great! Please open up google and rate us. |
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Chromosome 18 Clinical Research Center |
What is The Biggest Challenge in Developing Novel Treatments?
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Chromosome 18
2021 Annual Report
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2021 was an amazing year for Chromosome 18 because of YOU! See what you helped us accomplish in our 2021 Annual Report!
In an effort to better serve our members, our 2021 Annual Report summarizes the highlights of the past year. Thank you to our members, donors, and community partners for making 2021 one of our most successful years ever!
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Thank you and Happy Birthday to Suzie Cavallino, Kellie Cochran, and Carolyn Angelcor-Brennan for celebrating their birthdays with Chromosome 18 through Facebook Fundraisers!
Thank you Kathy Glascock for helping us secure a $10,000 grant from the Harvey Najim Foundation.
Thank you Patricia Lacey for your generous donation for the Starfish Dinner & Dance.
Thank you Bryan Cook for your donation in honor of Sloane Cook.
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Click here to see pictures from the Naperville Scramble! Thank you to Kathy Borello for helping make this event a success!
Click here to see pictures from the Houston Scramble! Thank you to Dave & Tam Aldrup, Angela Ashley, and Kristy Holder for all your help to make this event a success!
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Did you know Chromosome 18 has a new weekly blog? You can get the inside scoop from research updates, to stories from our families, the blog is another way to stay connected to our virtual community. You can find it here.
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Welcome to the Chromosome 18 Family! |
James Family, Northeast
Bermudez Family, Trisomy 18, Southwest
Flaherty Family, Iceland
Nair Family, Texas Area
Monsalve Family, Tetrasomy 18p, South Central
Millan Maler Family, Trisomy 18, Philippines
Agila Family, 18p-, UK
Zapien family, Texas Area
Armstrong Family, 18p-, Southwest
Trautwein Family, 18q-, Great Plains
Suarez Family, Brazil
Luong Family, 18q-, Southeast
Haugen Family, Rocky Mountain
Dugan Family, 18p-, Southwest
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Upcoming Calendar Events
October 23, 2022 - Starfish Dash in Fort Worth
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The Chromosome 18 Registry & Research Society | www.chromosome18.org |
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