Chromosome 18 January Happenings! |
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February 7th, 2023 at 7PM CST:
New Family Resource & Intro Call. Click here to register.
February 18th, 2023 at 6PM CST: Facebook Live with the 2023 Conference chairs, Matt and Julie Miller to share about Camp Chromosome 18. Click here to watch.
February 23rd at 4:30PM CST:
18p- Syndrome Support Group. Click here to register.
When you have a few minutes, please check out our Instagram Page! We post regular reels and pictures of our families and events, it's a great way to stay up-to-date with what's going on at Chromosome 18!
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New Name, Same Great Experience!
Join Us For Camp Chromosome 18
Annual Family Summit 2023
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Hotel rooms for Camp Chromosome 18 - Annual Family Summit 2023 are now available! The camp will be held at the Nationwide Hotel & Conference Center just outside Columbus, Ohio. Chromosome 18 has reserved a special block of rooms at the discounted rate of $149 per night (excluding tax). The room block is limited, so please make your reservations as soon as possible. The Room block covers July 9-12 only - other dates are NOT included.
To book your room, please call (614) 880-4300 and use Group Code 326772.
Rooms are going quickly!
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Payment Plans For Camp Chromosome 18 Are Now Open! |
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We know attending the conference can be costly. To help with this, Chromosome 18 is excited to announce a payment plan to make 2023's event more affordable with 5 monthly installments for the registration fees. Start conference payments in February 2022 and complete your registration when the registration portal opens the same month. You can sign up for a payment plan for just you or your whole family.
Simply fill out the form below, and the Chromosome 18 office will contact you to set-up your recurring payment. There is a one-time $10 per person set-up fee to cover the processing costs associated with the recurring payment.
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Self-Advocate Pet Night Recap |
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This month, Chromosome 18 Self-Advocates and families joined us for a Pet Night! This was a great way to connect to other families and to share our furry family members.
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Interested in Hosting The Future Annual Camp Chromosome 18 Family Summit? |
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Do you love the annual camp (formerly known as "conference")? Are you interested in seeing The Annual Camp Chromosome 18 come to your city? We are looking for families interested in hosting the 2024 family camp! This is a great opportunity to bring the family summit to your hometown, get involved with Chromosome 18, and be instrumental in making the 2024 Camp Chromosome 18 an incredible experience for our families. If interested, just email us at office@chromosome18.org to let us know, we'd love to hear from you!
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Board Member Keri Lamont on the Evoke Greatness Podcast |
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Board Member and Chromosome 18 parent, Keri Lamont, on the Evoke Greatness podcast. Keri has had an amazing career in the healthcare space that has spanned almost 3 decades. In that time, she has gone from a patient advocate to home care operator to client facing services in technology, bringing with her a compassionate heart and the desire to provide exceptional service.
In this episode Keri shares:
- The most pivotal points in her almost 3 decades in healthcare.
- How she has been shaped while going through hard things.
- The incredible lessons her daughter Kealy (18p-) has taught her and more.
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Chromosome 18 Clinical Research Center |
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Key Genes on Chromosome 18
This month, Dr. Cody shares an article on what happens behind the scenes in medical research and discusses the principals outlined in the Belmont Report that are the foundation of ethical research involving human subjects. Read her discussion below:
Is the medical information I send to the Chromosome 18 Clinical Research Center confidential? Who do they share my information with? How can I be sure my child is not experimented on?
These are reasonable questions that require a thorough explanation. That explanation requires some context and some history...
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Thank you and Happy Birthday to Ashley Koning, Kathy Doutree, Soe Soe, Amber Ennis, Elizabeth Cody, Marta Connally, Nicole Traviss Leslie, Nichole Phillips, Christina Marie Mast, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers!
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Check out our January Facebook Live featuring Sydney Alper as our Self-Advocate Spotlight. Sydney shared about how she balances work and school. Sydney currently works at a childcare center and goes to school for sign language and early education. Sydney is a self-advocate for Chromosome 18 and helps out with a lot with events and conference! Thank you Sydney for being our Self-Advocate Spotlight this month!
Are you going to be in San Antonio on February 25th? We invite you to join us for the Marvelous Martini Mixer, presented by Shavano Park Tennis Club and Cynthia Parsons Realty Group. It will be a fun evening of martinis and silent auctions to benefit chromosome 18 research. Please call the (210) 479-8771 to RSVP!
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Welcome to the Chromosome 18 Family! |
Lien Vanooteghem, 18q-, Belgium
Yuliya Starushchak, Trisomy 18, Mid-Atlantic
Alonso Toledo, 18p-, Chile
Kataleya Marin, Ring 18, Texas area
Hailey Sabastiani, 18q-, Northwest
Gloria Moon, 18p-, South Central
Fernando Fernandez, 18q-, Spain
Roger Voetel, 18q-, Netherlands
Erica Keating, Tetrasome 18p, Northeast
Melissa Kramer, 18q-, Northeast
Eskil Aspaas, Trisomy 18, Norway
Daniel Nieto Tabone,18p-, Brazil
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Did you know Chromosome 18 has a blog? You can get the inside scoop from research updates, to stories from our families, the blog is another way to stay connected to our virtual community. You can find it here.
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Upcoming Calendar Events
March 14, 2023 - 18q- Syndrome Support Group
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The Chromosome 18 Registry & Research Society | www.chromosome18.org |
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