The Chromosome 18 Registry and Research Society

UPCOMING EVENTS
C18 RESEARCH CENTER
2024 CONFERENCE 
 

June Happenings!

Sign Up for Starfish Camp Today!

Attention self-advocates of all ages - Chromosome 18 is hosting a summer camp in San Antonio! This September, we invite children, self-advocates, and their families to join us for a once-in-a-lifetime summer camp experience at Morgan's Camp, named one of the top 5 camps in the U.S. by Newsweek. This inclusive summer camp is accessible for all ages and abilities, with a disability-adaptive climbing wall, horseback-riding, archery, zip-line, pool, and much more. Join us in Texas with your family and friends, you won't want to miss this! Space is limited to 30 campers! Read our FAQ page here.

STARFISH CAMP

2024 Current Budget


Conference Registration Closes June 30th!

This is the last chance to register for the 2024 conference in Charlotte, NC. Full price registration closes for everyone June 30th!

REGISTER HERE

Upcoming Events

EVENTS
 

Chromosome 18 Clinical Research Center

We are adding to the Leadership Team!

As the vital research continues every day at the C18 CRC, find out a little more about Dr. Jon Gelfond & Dr. Kameel Karkar and their new roles to help our families.

READ HERE

Save the Date for Annual Golf Tournament and Starfish Soiree!

Chromosome 18's 20th Annual Golf Tournament will take place at Silverhorn Golf Club in San Antonio, TX on September 27th with a 1:00 PM Shotgun start. The Starfish Soiree will take place on Thursday, September 26th at Oak Hills Country Club. Registration opening soon!

Amazon Wishlist

Not coming to conference or not able to bring extra items to donate for the silent auction? You can purchase items from our Amazon Wishlist to donate to the silent auction!

Check out the list now if you would like to donate a item to the silent auction.

AMAZON WISHLIST

Touring VelocityTX

Dr. Cody went on a tour of VelocityTX last month with District 7 Council Woman Marina Alderete Gavito and her team.  

VelocityTX was established in 2017, as a nonprofit organization and a subsidiary of the Texas Research & Technology Foundation (TRTF). TRTF and VelocityTX are working together on a collective vision to drive economic growth, a better quality of life, and a safer world through collaboration and innovation.

Welcome to the Chromosome 18 Family!


Katie Ashbury, 18q-, South Central

Courtney Hildebrand, 18p-, South Central

Victoria Handsford, 18q-, United Kingdom

Yasmin Akamini, 18q-, Brazil

Tierra Harris, 18p-, South Central

Thank you and Happy Birthday to Brennan Benjamin Flowe, Errol Guthrie, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers! 

 

April Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with C18 parent, Maggie Beason. Maggie attended conference for the first time last year, and shares her experience for our first time families!

Contact Us

210-657-4968

office@chromosome18.org

 
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