Chromosome 18 August Happenings
Register here: bit.ly/c18upcomingevents

September: Virtual Family Game Night hosted by the Anama Family!

September 18th: Facebook Live featuring at 6pm CT!


When you have a few minutes, please check out our newest video resource "Meet Our Families" featuring video stories from our Chromosome 18 families as they share more about their lives and their Chromosome 18 journeys!
Happening this Month
Its so easy! We are asking you to ask 18 people to donate $18 to your fundraising page. Our goal is to have one team of fundraisers from EACH state. How much can we raise together? If you would like to help your state win, be sure to pick the team option during your registration and find your state’s name from the dropdown menu. You can encourage your friends and family from your state to join your team too!

A small donation can make a BIG difference!
18th Annual Golf Tournament!
Chromosome 18 is excited to announce this year will be the 18th Anniversary of our Annual Golf Tournament! Join us on October 7th, 2022 for a fun-filled day of celebration for our 18th year of golfing in support of our chromosome 18 children and families.

Play 18 holes at the beautiful Quarry Golf Course in San Antonio, TX while raising money to help children and adults with chromosome 18 abnormalities live healthy, productive lives.

Click here to see photos from last years' event!
In Honor of the 18th Anniversary of the Golf Tournament, Chromosome 18 invites you to join us at for an evening of cocktails, hors d'oeuvres and auction.

Thursday October 6, 2022 - 6:00pm - Oak Hills Country Club

**Registered golfers and one guest will be admitted free. Those not registered for the golf tournament may purchase tickets to the Starfish Soirée for $50 each by clicking the button below.**
Chromosome 18 Clinical Research Center
What Does Treatment Look Like?

When you read this question what comes to mind? Is it the scarecrow from the movie, The Wizard of Oz, who wants a brain? Then, once conferred with his degree in Thinkology by the great and powerful Wizard of Oz, the scarecrow immediately recites the Pythagorean Theorem (which he got wrong by the way). Or is it like in the movie Young Frankenstein in which the monster is suddenly sedate and calmly reading the Wall Street Journal?
San Antonio Area Families: Emergency Need Fund
We are excited to announce Chromosome 18 has received a $10,000 grant to assist low-income families acquire medical necessary items for their Chromosome 18 affected child.

This fund is the first time ever we've been able to offer a program like this. This will provide medical items (up to $2,000 per family) for special needs children that our chromosome 18 families in the San Antonio area desperately need but cannot afford. 

Please reach out to office@chromosome18.org with questions.
Thank you and Happy Birthday to Rachel Sibert last bday thanked and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers! 

Thank you to all our amazing volunteers and donors for Conference. Thank you William Guthrie last one thanked.

August New Member Highlight
Upcoming & Past Events
Check out our August Facebook Live featuring Self-Advocate, Devon Lacey! She shares about her job, hobbies, conference experience and more!

Big congratulations to our amazing SA Worx intern Tessa (pictured below) who won the Outstanding Intern award for her work with The Chromosome 18 Registry & Research Society this summer. Thank you for all your hard work, Tessa, helping us organize the 2022 Annual Family Conference and also helping us prep for the 18th Annual Golf Tournament on October 7th. Tessa will be headed to MIT soon to start her first semester this fall - we are so proud of and inspired by you!
Welcome to the Chromosome 18 Family!
Henderson Family, 18p-, Canada
Maass Family, 18q-, Germany
Brochier Martinez Family, Tetrasomy 18p
Tracey Family, Ring 18, Australia
Gonzalez Family, Trisomy 18, Texas Area
Freeman Family, 18q-, Great Plains
Hemmasi Family, Trisomy 18, Texas Area
Lutton Family, Trisomy 18, Australia
DeMarco Family, 18p-, Southwest
Stroud Family, 18q-, Canada
Lems Family, 18q-, Rocky Mountain
Fidler Family, Tetrasomy 18p, Southwest
Hammond Family, 18q-, UK
Sandou Family, Trisomy 18, Texas Area
Plancon Family, Tetrasomy 18p, France
Did you know Chromosome 18 has a new weekly blog? You can get the inside scoop from research updates, to stories from our families, the blog is another way to stay connected to our virtual community. You can find it here.
Upcoming Calendar Events



October 16, 2022 - Starfish Dash in Fort Worth

December 4, 2022 - Chromosome 18 Day! (more info TBA)
 
Planning an event? Contact office@chromosome18.org to have the event listed in our newsletter and on our website!
The Chromosome 18 Registry & Research Society | www.chromosome18.org