Chromosome 18 June Happenings |
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July 7-9th - We will be going live throughout our 27th Annual Conference. Watch for us on Facebook!
July 18th - Facebook Live featuring Conference Co-Chairs Dave & Tam Aldrup as they wrap up conference at 6pm CT.
When you have a few minutes, please check out our newest video resource "Meet Our Families" featuring video stories from our Chromosome 18 families as they share more about their lives and their Chromosome 18 journeys!
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The Starfish Dinner & Dance is the last night of the conference Saturday, July 9th. Join us for our reception, celebration dinner, all-out dance party, and silent auction.
Raise or sponsor at least $1,500, and you’ll be able to pick your choice of table (that seats 10 people) in the ballroom for the Starfish Dinner & Dance!
We are so excited to see you at Conference this year in San Antonio, July 7-9th
(check-in on July 6th). See you soon!
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Conference Nights Out!
Are you coming to conference? Don't forget to register for our fun nights out! Must register here by July 1st (no onsite registration at conference).
If you would like to volunteer at the conference, please click here! We need help with check-in, registration, merch, silent auction, the Club 18 room and more!
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Chromosome 18 - 2021 Annual Report |
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DID YOU KNOW: 200 new member families joined in 2021?
DID YOU KNOW: we raised over $50,000 on Facebook Fundraisers in 2021?
2021 was an amazing year for Chromosome 18 because of YOU! See what you helped us accomplish in our 2021 Annual Report below!
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Chromosome 18 Clinical Research Center |
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What is on the horizon for Trisomy 18?
I never know if I should start with disclaimers or end with them. But this time I am starting with one. I am always on the lookout for anything that might be relevant to improving life for people with any of the chromosome 18 conditions.... The disclaimer is that this article is about a hint that might just turn out to be relevant, but then maybe not, it is just a hint of hope.
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Bexar County Families: Emergency Need Fund |
We are excited to announce Chromosome 18 has received a grant to assist low-income families acquire medical necessary items for their Chromosome 18 affected child. This fund is a program that will provide medical items (up to $2,000 per family) for special needs children that our chromosome 18 families in Bexar County and surrounding areas desperately need but cannot afford.
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18th Annual Golf Tournament! |
Chromosome 18 is excited to announce this year will be the 18th Anniversary of our Annual Golf Tournament! Join us on October 7th, 2022 for a fun-filled day of celebration for our 18th year of golfing in support of our chromosome 18 children and families.
Play 18 holes at the beautiful Quarry Golf Course in San Antonio, TX while raising money to help children and adults with chromosome 18 abnormalities live healthy, productive lives.
Click here to see photos from last years' event!
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Chromosome 18 Europe Life Stages Online Conference
9:15am-8:45pm on Saturday 30th July 2022
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Should you have any problems email ch18eurmembership@gmail.com and they will try to help you (from 18th July onwards, please be patient).
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They have organized sessions and videos from Jannine Cody and the Registry, Kate Reynolds teen specialist will be presenting with girl and boy specific sessions on hand, and we have a specialist in 0-9 presenting as well alongside an update on the European research. Every session will be translated and captioned, so please do let us know your needs.
They will also have the very popular Self Advocate’s panel with lots of new voices to hear, a session for all the kids to hang out with fun activities, as well as a disco and to finish a parent/carers drop in where we can share a drink and toast our lovely global family.
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Thank you and Happy Birthday to Carolyn Angelcor-Brennan and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers!
Thank you Patricia Lacey, Dave & Tam Aldrup, Antoinette Cox, Jannine Cody, Elizabeth Cody, Denise Parker, Jeffrey Turner, Annice Hill, Kathy Borello, Claudia Traa, and Joel Vaslow for your very generous donations for our Starfish Dinner and Dance!
Thank you TopNotch Silk Screening, Laura & Jeff Hobbs, and Rich Vogt for your generous donations for our Starfish Scrambles! Thank you Dan Shea & Stephanie Stokes - Greater New Orleans Foundation and Mays Family Foundation for the generous grant! Thank you MC Companies! Thank you to the Harvey E Najim Charitable Foundation for the grant!
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June New Member Highlight |
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Click here to see pictures from Virtual Game Night!
Click here to see pictures from the Atlanta Starfish Scramble!
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Did you know Chromosome 18 has a new weekly blog? You can get the inside scoop from research updates, to stories from our families, the blog is another way to stay connected to our virtual community. You can find it here.
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Welcome to the Chromosome 18 Family! |
Keen Family, 18p-, UK
Jager Family, 18p-, Great Plains
Doughtfire Family, Germany
Santos Family, Portugal
Brown Family, Texas Area
Evans Family, 18p-, Southwest
Gregg Family, 18q-, UK
Bacani Family 18p-, Philippines
Opasik Family, Tetrasomy 18p, Mid-Atlantic
Schoen Family, Texas Area
Cabell Family, Mid-Atlantic
Pathak Family, 18q-, India
Garcia Family, Tetrasomy 18p, Texas Area
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Upcoming Calendar Events
October 23, 2022 - Starfish Dash in Fort Worth
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The Chromosome 18 Registry & Research Society | www.chromosome18.org |
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