Chromosome 18 January Happenings
From all of us at Chromosome 18, we wanted to say THANK YOU for your support! Your contributions are invaluable in helping us achieve our goal of making chromosome 18 conditions the first treatable chromosome conditions. Click here to watch a video from some of our board members and staff.
February 10th - New Member Intro Call at 3pm CT. We invite families to join us for an opportunity to connect and meet other parents and coordinators.

February 18th - Facebook Live with Northeast Coordinator, Jason Goodman at 6 pm CT. He will share more about Rare Disease Day and how you can get involved.

February 20th - Virtual Family Game Night hosted by your Great Plains Coordinator Family - The Anamas. Grab a snack and hop online for a fun night of games!

February 28th - Today we celebrate Rare Disease Day and focus on the 35 million people across the country living with rare diseases.

Register here: bit.ly/c18upcomingevents
Happening this Month
We are excited to announce the official Fiesta Event: Starfish Dash is on April 9, 2022.
Our goal is to bring together health-minded people to run, walk, participate virtually and volunteer to raise awareness and funds for our organization's mission of helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy and productive lives.

Look for more information coming soon!
Your Support Allowed $50,000 to be donated to the Chromosome 18 Clinical Research Center!
The Chromosome 18 Registry & Research Society presented the Chromosome 18 Clinical Research Center with a check for $50,000. The donation was made possible by member fundraising. The funds donated to the Chromosome 18 Clinical Research Center directly fund research and help produce resources that you can share with your doctors. Learn more about the Chromosome 18 Clinical Research Center and their work!
Pictured from left to right: Annice Hill, Amelie Simons, and Dr. Jannine Cody
27th Annual Family Conference | July 7-9th, 2022
We are looking forward to Chromosome 18 27th Annual Family Conference coming up July 7-9th, 2022 in San Antonio, Texas. We can't wait to share more information about the conference with you and your family. We hope that you can join us!

Click here to reserve your room and click here for payment plan sign-up.
*Conference Registration will open in March.
*We want this to be as safe as possible, so we will re-evaluate closer to the conference.
Thank you and Happy Birthday to Anitra Bullock, Carol Connor Cohen, Tracy Puffer Hagen, Christina Mast, Medina Downs-Franco, Elizabeth Cody, Azucena Ma, Leann Landmeyer Moriarty, Amber Ennis, Tammy Bates, & Ashley Koning for celebrating their birthdays with Chromosome 18 through Facebook Fundraisers! 

Thank you to all our Phantom Tea & Wine donors and participants. As our largest and most important fundraiser of the year, you helped make an impact on families through research, education, and bringing families together. A huge thank you to the families that supported us this year!

Thank you to everyone who participated in our end-of-year giving. We really appreciate your support!

January New Member Highlight:
Basner/Startzman Family
Upcoming & Past Events
Click here to see Part 1 of our January FB Live and here to see Part 2 with Self-Advocate, Sydney Alper!

Click here to see photos from our Dog Days of Chromosome 18 Member Zoom event.
Welcome to the Chromosome 18 Family!
Borges Family, Trisomy 18, Rocky Mountain
Lizarraga Family, Texas Area
Khanderaya Family, South Central
Wallgren Family, Rocky Mountain
Snover Family, 18p-, Southeast
Powell Family, Texas Area
Villas Gabales Family, Trisomy 18, Phillipines
Meyer Family, Trisomy 18, Rocky Mountain
Latimer Family, 18p-, Great Lakes
Zayon Family, 18q-, Mid-Atlantic
Kleinberger Family, Tetrasomy 18p,Mid-Atlantic
Fidler Family, Tetrasomy 18p, Southwest
Kastalanych Family, Tetrasomy/Trisomy 18p, Texas
Shoemaker Family, South Central
Narajo Family, 18q-, Texas Area
Shelley Family, 18p-, UK
Upcoming Calendar Events
 

July 7 - 9, 2022 - 27th Annual Family Conference in San Antonio
 
Planning an event? Contact office@chromosome18.org to have the event listed in our newsletter and on our website!
The Chromosome 18 Registry & Research Society | www.chromosome18.org