After several years with NCDSA, Donna is stepping back to dedicate increased time to her family. She will continue championing for her son, individuals with Down syndrome, and individuals with IDD. Donna has been a wealth of knowledge and our conference lead for many years. 

Please join us at a Mom’s Night Out to celebrate and thank her for her dedication to our mission.

Farewell Donna MNO

Wednesday, May 1

Gizmo Brew works - Raleigh

Last month we celebrated Emma's one year of employment with the North Carolina Down Syndrome Alliance, serving as the Family Support Assistant!

Not only has she been a great asset to the team, she has also played a crucial role in two recent accomplishments:

• Receiving a Self-Advocate Employment Initiative Award from the Global Down Syndrome Foundation, which allows us to pay Emma for her work at additional events outside of her standard office hours!
• Emma's Corner, a new segment of the monthly T-21 newsletter where Emma will highlight upcoming events!

Congratulations on your one year anniversary and thank you for all that you continue to do for the NCDSA community, Emma!

As we celebrate Autism Acceptance Month, we want to share resources to those navigating the intersection of Down syndrome and autism.

• Did you know that the North Carolina Down Syndrome Alliance (NCDSA) hosts a closed Facebook group specifically tailored to families seeking support in this area? Whether you're a parent or caregiver, connecting with others navigating this dual diagnosis can make a world of difference. Reach out to info@ncdsalliance.org if you'd like NCDSA to connect you with fellow parents and caregivers who share similar experiences.
• Individuals with Down syndrome can also be diagnosed with Autism Spectrum Disorder (ASD). Check out the National Down Syndrome Society's web page, which includes "Down Syndrome and Autistic Spectrum Disorder: A Look at What We Know" by George T. Capone, M.D. This comprehensive resource offers valuable insights into the co-occurring diagnosis of Down syndrome and ASD.
• The Down Syndrome-Autism Connection™ is the only nonprofit organization dedicated solely to co-occurring Down syndrome and autism spectrum disorder (DS-ASD) in the United States.
• “When Down Syndrome and Autism Intersect” A Guide to DS-ASD for Parents and Professional “offers a thorough examination of the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagnosis and best practices for screening, treatment, and care taking through the lifespan.”

Let's continue spreading understanding, acceptance, and support for all individuals and their unique neurological makeup. Together, we can build a community of support, understanding, and acceptance.

The NCDSA families and community SHOWED UP for World Down Syndrome Day this year! Whether you rocked your socks on March 21st, helped to educate and spread awareness about Down syndrome, or joined us at one of our events, THANK YOU for helping us celebrate all month long!

Check out how our families rocked their socks!

You can also check out a recap of all of the NCDSA March WDSD events below, including the Greenville Sock Hop, Paint the Zoo Yellow and Blue, and WDSD at the Governor's Mansion.

Why attend?

NCDSA has assembled a diverse lineup of speakers and experts who will share their expertise, experiences, and innovative approaches in areas such as education, healthcare, and community support. This conference will not only be an opportunity to learn from these knowledgeable speakers but also a platform for networking and collaboration with fellow attendees who share a passion for enhancing the lives of individuals with Down syndrome.

We believe that by coming together, sharing knowledge, and fostering understanding, we can make meaningful strides in supporting individuals with Down syndrome to thrive and achieve their goals.

Volunteers Needed:

Want to help make this year's Conference a success? We have a number of volunteer opportunities available, from helping with set up, to serving as a Peer Companion, to donating your skills as a photographer.

Check out the opportunities and let us know how you can help!

Transitioning to preschool for children with Down syndrome doesn't have to overwhelm parents. This series is designed for parents and caregivers of children aged 0-3, offering insights to prepare for the move from Early Intervention to preschool services. Gain knowledge on the special education process and your role in it, empowering you to participate effectively in developing a tailored plan for your child. The series culminates in a Roundtable with experienced parents and a 30-minute IEP consultation to support your child's transition, offered in-person or virtually.

The research team at UNC - Chapel Hill and University of Nebraska - Omaha is working to create an evidence-based, online nutrition and physical activity program for families of young children with Down syndrome called HomeGrown.  

The HomeGrown program will include short videos for families about various nutrition and physical activity topics. They are looking for 8 families to provide feedback on a few "beta" videos to help us make the content relatable, practical, and enjoyable.

Your feedback is incredibly important to the final product, and you will be compensated with a $25 gift card for your time and expertise as a family member of a child with Down syndrome.  

If you are interested, please complete this interest form.

Eligible North Carolinians who are covered by NC Medicaid Direct will be covered by a Tailored Plan beginning July 1. The name of their Medicaid plan will change but the services covered remain the same. A bilingual toolkit with accessible resources is now available for people impacted by the transition to Tailored Plans.

Save the Date 2024

• April 27: 2024 North Carolina Down Syndrome Conference
• June 1: Buddy Walk Team Registration Opens
• June 9: Family Picnic and Pep Rally
• October 20: 2024 Triangle Buddy Walk

A very special welcome to Angelica Flournoy and Happy Birthday Ayden (who turned 1 this month!!)

A warm welcome to Brandie Ramsay and family!

Baby Legend joined our NCDSA crew in January and we had a wonderful time getting to know her at our New Family Support meeting this past Saturday!

Remember to reach out if your family has any needs or supports or if you want to be a Parent mentor to familysupport@ncdsalliance.org or text 919-532-9207.

This Mother's Day, celebrate the fierce love you have for your kiddos with an extra chromosome! Introducing our limited edition Mama Advocate merch:

• Choose from hoodies, crewnecks, v-neck shirts, and tanks!
• Multiple colors available to suit your style!
• Orders end April 22nd, so snag yours in time for Mother's Day!

Embrace your role as a champion for your child and wear it loud and proud. Let's spread love, acceptance, and advocacy together!

We loved celebrating the amazing NCDSA siblings for National Siblings Day this month! In case you missed it, check out the celebration video.

Let's keep the celebration going! Sibs, this month we will have an extra special opportunity to participate in GigiFit. Join our team NCDSA Sibshop Crew at Urban Air, Raleigh from 10-2 for an afternoon of FUN for a cause! NCDSA will cover the cost of all sibs!

Step into action—it's Buddy Walk time and we need YOUR help! Join us in focusing your passion and skills toward the following areas:

• Logistics 
• Team Engagement 
• Sponsorship 
• Marketing 
• Donations

Ready to Get Involved? If you're eager to roll up your sleeves and be part of something extraordinary, let us know!

Calling all NCDSA moms!

• Help connect moms in our community!
• Support your favorite local restaurant or business!
• Find other NCDSA moms in your area!

We are looking for volunteers to host Moms Night Out events! It doesn't just have to be an evening event, daytime and weekend events are encouraged as well! 

Looking to get involved? Consider giving your time or expertise! We have in person and virtual opportunities available.

No commitment is too small!