The latest news from NCDSA - May 2022

Hot off the press...

  • The National Down Syndrome Society (NDSS) is accepting submissions of a photo of yourself/your loved one with Down syndrome for the 2022 Times Square Video presentation on September 17, 2022 at 9:30am ET! Submissions will close on July 10, 2022 at 11:59 ET so get yours in now. Submit photos here.
  • Doctors from the Adult Down Syndrome Clinic at Advocate Medical Group share their recommendations for booster shots based on what is known about COVID-19 infections and vaccinations in individuals with Down syndrome. Read about Information on COVID-19 Booster Shots.

In case you missed it...

Spend the morning sharing your experience as it relates to Down syndrome. Participating in  Down Syndrome Advocacy Day is as easy as explaining the accomplishments and struggles in your life as a person with Down syndrome or as a family member/caregiver. Training is provided so register today! Registration closes May 22nd.

Down Syndrome Advocacy Day Info and Registration

Wednesday, June 15th - 7:30pm

Supporting Healthy Sexuality for your Loved One with Down Syndrome

Katie Frank, PhD, OTR/L

We know that individuals with Down syndrome are social beings and want to have healthy relationships. This is a skill they need to learn as it may not be inherent. In this session, participants will learn about why it is important to teach sexuality education, what topics that should be addressed, and how to talk about them. Resources will also be shared including visual supports in addition to books and free online resources.

Virtual Speaker Series Info and Registration

Transition to Pre-K Series

The Transition to Pre-K Series includes important information for parents/caregivers of children 1-3.5 years of age. The series will prepare you for the big move from Early Intervention Services to school-age rights and services. The series will help you continue to build a strong educational foundation for your child. Learn about the pre-school special education process and your role and responsibilities. Become better prepared to participate on the IEP team and develop an appropriate plan for you child.

Transition to Pre-K Info and Registration


Sibshops are pedal-to-the-metal events where siblings meet other sibs (usually for the first time), have fun, laugh, talk about the good and not-so-good parts of having a sibling with special needs, play some great games, learn something about the services their brothers and sisters receive, and have some more fun. 

Siblings ages 8-14 of an individual with Down syndrome are encouraged to attend. Held monthly, sibs may attend every month or once in a while. Come join the fun and make new friends who have something in common. 

Sibshops Information and Registration

A New Look

NCDSA is busy with activities all month long. Events take place at the NCDSA Training Center, virtually, Eastern NC Satellite office, as well as out in the community. There is something for everyone as NCDSA works to cover the lifespan of individuals with Down syndrome, their families, and the community that supports them. NCDSA has implemented a new online registration system. You will find all the ongoing monthly activities in one place, making it easy for you to register in advance so NCDSA is prepared to offer outstanding programming and events. Check out NCDSA's June Events and Activities here.

Monthly Triangle Buddy Walk Update

The Triangle Buddy Walk is NCDSA's largest event! You can have a significant impact on its success. Volunteer to be a Planning or Marketing Assistant. Duties include but are not limited to:


- marketing and social media support

- locating vendors for day for the event

- volunteer recruitment

- sending donation requests

- planning incentives and challenges for       teams 

- planning logistics for day of event

Volunteers work directly with the Event Coordinator. Volunteers must be able to meet 

bi-weekly for a meeting/check in starting on 6/1 (in-person or virtually). 

Volunteer for the Triangle Buddy Walk
Register for Medicaid Transformation Webinar
Mom's Retreat Info and Registration

Monthly Events and Activities

Unless otherwise noted, events and activities are held at the

NCDSA Training Center

2621 Spring Forest Road

Raleigh, NC

Conveniently located off 540 - ample parking

For May events, please click the individual link for information and registration

5/19 T-21 Club Bingo 7:00pm (Virtual)

5/22 NCDSA Sibshops 3:00pm - 5:00pm (NCDSA Training Center)

5/24 Down Syndrome Advocacy Day 9:00am - 1:00pm (Raleigh)

5/24 Moms' Night Out  at 5th Street Hardware Restaurant and Taproom formerly Winslow's Deli and Tavern  7:00pm (Greenville)

5/25 Moms' Night Out at Vinson's Pub and Eatery 7:00pm (Clayton)

5/26 Session 5 Improvaneer Workshop 7:00pm (Virtual)

For June events, please click the button below for information and registration

6/01 - Transition to Pre-K Series Part 1 8:00 pm (NCDSA Training Center and Virtual)

6/01 - Homeschool Meetup 12:30 pm (John Chavis Memorial Park Raleigh, NC)

6/02 - T-21 Club Bingo 7:00 pm (Virtual)

6/03 - T-21 Club Social Outing 7:00 pm (ParTee Shack)

6/07 - Mom's Night Out 7:00 pm (Mason Jar Tavern, Holly Springs)

6/08 - Transition to Pre-K Series Part 2 8:00 pm (NCDSA Training Center and Virtual)

6/09 - Dad's Night Out 7:00 pm (Aviator Brewing, Fuquay Varina)

6/09 - Improvaneer Workshop 7:00 pm (Virtual)

6/11 - NCDSA Learning Program 8:00 am (Registration Closed)

6/11 - NCDSA Family Farm Day 10:00 am (Hillsborough)

6/14 - Coffee Connection 10:00 am (NCDSA Training Center)

6/15 - Homeschool Meetup 12:30 pm (NCDSA Training Center and Virtual)

6/15 - Noche de Mamas 8:00 pm (en Espanol) (Virtual)

6/15 - Transition to Pre-K Series Part 3 8:00 pm (NCDSA Training Center and Virtual)

6/16 - Community Playdate 10:00 am (Splashpoint Greenville, NC)

6/16 - T-21 Club Bingo 7:00 pm (Virtual)

6/17 - Mom's Night Out 7:00 pm (Chapman's Food and Spirits, Moore County)

6/18 - Social Saturday 9:00 am (Ages 0-4)

6/18 - Social Saturday 10:30 am (Ages 5-10)

6/18 - Social Saturday 12:00 pm (Ages 11-15)

6/20 - Ice Cream Social 6:00 pm (Kindergarten and Pre-K graduates)

6/21 - Mom's Night Out 7:00 pm (Chico's Mexican Restaurant, Rocky Mount)

6/22 - Ladies Night Out and Buddy Walk Kickoff 6:00 PM (Clouds Brewing, Raleigh)

6/23 - Improvaneer Workshop 7:00 pm (Virtual)

6/24 - Mom's Night Out 7:00 pm (Logan's Steakhouse, Greenville, NC)

6/26 - Sibshops 3:00 pm (NCDSA Training Center)

6/27 - Community Playdate 10:00 am (Wake Forest Spray ground)

6/29 - Homeschool Meetup 12:30 pm (NCDSA Training Center and Virtual)

6/30 - T-21 Club Bingo 7:00 pm (Virtual)

Information and Registration for June Events

North Carolina Down Syndrome Alliance |

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