It’s not goodbye, but see you later

Dear North Carolina Down syndrome community,

I hope this message finds you all in good health and spirits. It is with mixed emotions that I write to you today. For the past seven incredible years, it has been both my privilege and joy to serve as part of your community and lead the NCDSA (North Carolina Down Syndrome Alliance). I have cherished every moment of this journey, and now I have some exciting news to share with you.

I have accepted a new opportunity with a national Down syndrome organization, and as a result, I will be passing on the torch of leadership at the NCDSA. This decision has not been made lightly, and it comes with a heart full of gratitude for your unwavering support, belief in my vision, and the financial assistance you’ve provided throughout these years.



During my tenure, I have had the privilege of witnessing the remarkable growth of our community. I’ve seen your children grow, overcome obstacles, and become productive adults who live independently and thrive in integrated and competitive employment. I’ve had the honor of standing beside many of you as a guide through life’s challenges. I’ve watched with immense pride as our Buddy Walk evolved into the incredible success it is today. I’ve had the pleasure of working alongside dedicated board members, and I have full confidence that our board of directors will ensure a smooth and effective transition.

I want to express my deepest gratitude for welcoming me into your circle all those years ago. The impact you’ve had on my life is immeasurable. Leading the NCDSA and witnessing its growth has been an honor I will forever treasure. The friendships I’ve gained are invaluable, and I am confident that the legacy I leave behind will continue to flourish under new leadership. The NCDSA is still going strong, and I’m excited to witness the incredible journey it will continue on in the future.

So, this is not a final farewell, it is a “see you later.” I am excited to watch the continued success of the NCDSA and remain connected with this extraordinary community. Thank you for everything, and until we meet again, let us continue to work together to make a positive impact on the lives of those we serve.

With heartfelt gratitude,

SAVE THE DATE for our farewell to Christina Moms Night Out celebration on October 26th!

Details to come!

The ABLE account is a state-run savings program for eligible people with disabilities in the United States. It continues to be an area many families have questions about; in terms of its setup, how to effectively use it, and how it compliments a special needs trust. You are invited to an interactive, exciting experience to learn about ABLE accounts and Special Needs trusts with A Special Needs Plan founder Ryan Platt. Learn how ABLE accounts can be an asset to your loved one with Down syndrome and other disabilities. 

Ryan Platt founded A Special Needs Plan in 2005 and has been a pioneer in his field. He completed his Special Care Planner Certification at the American College in Bryn Mawr, PA. He continued his financial planning education by completing his Chartered Financial Consultant®, Chartered Special Needs Consultant™ and Certified Family Business Specialist designations. He's grown A Special Needs Plan into an elite, nationally recognized planning firm. Ryan's background includes advanced training in estate and tax planning, special needs trusts, government programs, and the emotional dynamics of working with people and families with loved ones with special needs.

2023 ASSISTIVE TECHNOLOGY Expo: A Day in the Life with AT

October 5, 2023, 9:00 am - 5:00 pm

McKimmon Conference and Training Center, Raleigh, NC

Visit the FREE 2023 Assistive Technology Expo to preview the latest technology, connect with AT vendors, explore community resources, and win prizes (if attended in-person). There is a virtual option available for those unable to attend in-person.

Social Skills for the Workplace Group October 4th - 25th

Hosted by Adult Down Syndrome Center, individuals with Down syndrome are invited to participate in our 4-week virtual group on socially appropriate behavior in the workplace.

In this 4-week virtual group, individuals with Down syndrome will learn about socially appropriate behavior in the workplace. The group will be facilitated by Katie Frank, PhD, OTR/L, occupational therapist, and Abby Rowley, LCSW, licensed clinical social worker at the Adult Down Syndrome Center. There is no cost to participate in the groups.

I/DD Summit for Families - October 14th



You are invited to attend the FREE I/DD Summit for Families on October 14th virtually or in-person! We encourage you to attend in person so you can benefit from the face-to-face dialog with I/DD leaders, plus network and make connections with other families.

The program will address the changes in Medicaid, DSP staff shortage, too few Innovation Waivers, and lack of housing for adults with I/DD. Panelists will take questions from the attendees during the sessions. This is FREE and open to all North Carolinians.

NCDSA welcomes Hispanic families from Raleigh and surrounding areas to join us for our annual family picnic. The picnic is a great way for us to gather and visit with friends and make new ones too! NCDSA will provide pizza and bottled water. Please bring a side dish or dessert to share. 

Location: Playwell Park 224 Sunnybrook Rd, Raleigh, NC

Coffeehouse is BACK for adults 18+ with ID/DD!



The Serving Cup supports opportunities for socializing, networking and sharing resources within the adult special needs population.

One key way we do this is through the Coffeehouse programs.

While it was started as a way to provide social experiences for adults with special needs, the Coffeehouse program has become much more. It now creates a bridge between communities and gives everyone in attendance the opportunity to make friends with people outside their usual social circles. And, it’s lots of fun!

Coffeehouse is now in three locations:  

1. Good Shepherd Lutheran in Raleigh (last Friday of the month) – Contact Cortney Tyson at Cory.tyson@gmail.com
2. Resurrection Lutheran Church in Cary (2nd Friday of the month) – Contact Brenda Peterson at Tarheelbsp@gmail.com, 919-813-8544
3. Garner United Methodist Church in Garner (3rd Friday of the month) – Contact Katie at CardenasDanaher@bellsouth.net or Tracey at graceyskids@gmail.com

Save the Date - Holiday Events

• December 2: Triangle Family Holiday Party
• December 2: T-21 Club Social Holiday Party
• December 4: Moms Night Out Annual Holiday Party

Calling all NCDSA moms!

•  Help connect moms in our community!
•  Support your favorite local restaurant or business!
•  Find other NCDSA moms in your area!

We are looking for volunteers to host Moms Night Out events! It doesn't just have to be an evening event, daytime and weekend events are encouraged as well! 

It takes about 100 volunteers to help make the Triangle Buddy Walk a success!

We have a variety of volunteer positions beginning with set-up on October 21st, spanning across the event on October 22nd, concluding with clean-up support. Are you a photographer or videographer? If so, please reach out to dawn@ncdsalliance.org.