The latest news from NCDSA - March 2022

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Grand Opening and Ribbon Cutting Info and Registration
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Info and Registration
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Sibshops Info and Registration

Parents learn how to actively participate in writing an Individualized Education Program (IEP) and navigate the "maze" of forms and paperwork that are part of your child's special education. This workshop will help you identify your child's strengths and needs. It will also prepare you with helpful tips to use assessment results to prepare for writing ambitious and appropriate goals. You will learn how to tune up your skills and identify strategies to ensure that your child's IEP is implemented and changed as she/he matures.

Info and Registration
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Round Up for Down Syndrome💛💙

Penn Station East Coast Subs supports NCDSA again! Penn Station is hosting a Round Up for Down Syndrome campaign to celebrate World Down Syndrome Day. Between March 1st and March 21st customers can round up their purchase to donate to NCDSA! And for a donation of $2 or more, customers will receive a Buy 1 Get 1 Free coupon for a sandwich on their next visit. Plan your visit to Penn Station East Coast Subs.


Thank you for your continued support!

Parents of Children 18 and Older 

Seeking parents of adult children with Down syndrome and other Intellectual or Developmental Disabilities (IDD). Share your experiences with providing and finding care for your adult son or daughter.

Participate in an online survey and/or interview in English or Español.

Parents of Adults Survey

Parents of Children Born 2003 or Later

A team of researchers, led by clinicians from Harvard Medical School and Massachusetts General Hospital, have created a survey to study the medical support that parents receive around the time of the birth of their child with Down syndrome. If you choose to complete their brief questionnaire, your responses will help inform future research, policy, and advocacy that will affect the medical care that future parents receive.

Info and Survey English
Info y Encuesta Español

LAND is conducting a short survey to understand the present status of the Innovations Waiver waitlist, also known as the Registry of Unmet Needs, and how it impacts individuals with I/DD, their families, caregivers, and other stakeholders. Additionally, we want to understand about people's current understanding of the waitlist, legislative advocacy, and more.


The aim of this brief survey is to understand further the current landscape of the Registry. It gives data to the question: Where are we now? with respect to the Registry.

All participants will be entered to win one of nine $50 Amazon gift cards! The recipient must be individual with I/DD or a family member. LAND will choose three winners per region. 

Take the LAND Survey
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Info and Registration
T-21 Club Info and Registration
3-21 Squad Info and Registration
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Picnic Info and Registration
Moms' Night Out Info and Registration
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NCDSA Playdate info and Registration
Dads' Night Out Info and Registration
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Farm Day Info and Registration
Coffee Connection Info and Registration

Monthly Events and Activities

Click the individual link to register

Unless otherwise noted, events and activities are held at the

Down Syndrome Training Center

2621 Spring Forest Road

Raleigh, NC

3/17 Session 4 Improvaneer Workshop Virtual 7:00pm

3/19 World Down Syndrome Day at the Zoo (registration closed)

3/21 World Down Syndrome Day Open House 3:00pm - 7:00pm

3/23 NCDSA Homeschool Meetup 12:30pm - 2:30pm

3/24 T-21 Club Bingo Virtual 7:00pm

3/24 Moms' Night In Virtual 8:00pm

3/26 New Family Support Meeting 10:00am -12:00pm

3/27 NCDSA Sibshops 3:00pm - 5:00pm

3/28 NCDSA Playdate 10:00am - 12:00pm

3/28 Moms' Night Out at Que Chula Chapel Hill 7:00pm

3/30 Lifespan Transition Series IEP Workshop Virtual 7:30pm

3/31 Session 4 Improvaneer Workshop Virtual 7:00pm

4/01 T-21 Club Buffaloe Lanes Bowling 7:00pm

4/06 NCDSA Homeschool Meetup 12:30pm - 2:30pm

4/07 T-21 Club Bingo Virtual 7:00pm

4/08 3-21 Squad Game Night 7:00pm

4/09 The Learning Program (registration closed) 8:00am - 12:00pm

4/09 Family Farm Day Strouds Creek Farm 10:00am

4/10 Eastern North Carolina Buddy Walk 2:00pm - 5:00pm

4/12 Coffee Connection 10:00am - 12:00pm

4/14 Session 4 Improvaneer Workshop Virtual 7:00pm

4/15 Moms' Night Out at Chapman's Food & Spirits Southern Pines 7:00pm

4/19 Moms' Night Out at Salt and Lime Cabo Grill North Raleigh 7:00pm

4/20 NCDSA Homeschool Meetup 12:30pm - 2:30pm

4/21 Dads' Night Out at Franklin Motors Chapel Hill 7:00pm

4/21 T-21 Club Bingo Virtual 7:00pm

4/24 NCDSA Sibshops 3:00pm - 5:00pm

4/28 NCDSA Playdate 10:00am - 12:00pm

4/28 Session 5 Improvaneer Workshop Virtual 7:00pm


North Carolina Down Syndrome Alliance |

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