August 24, 2020
The Youngest Family Caregivers: Tweens and Teens
Part of growing up is learning how to help others, starting with the family. For most kids, that means doing ordinary household chores — walking the dog, helping with meals and clean-up, folding the laundry. It might mean showing Grandpa how to use his new computer or helping a younger sister with homework.

But millions of children and adolescents also help an ill or disabled parent, grandparent or sibling with dressing, bathing and mobility. They give medications, change bandages, operate equipment, act as interpreters in conversations with health care providers — all the things adult caregivers can find challenging.

These responsibilities can lead to useful skills, such as the ability to manage multiple tasks and express empathy. A young person’s caregiving experience may lead to a career in medicine or social service. However, being a caregiver also takes time from schoolwork, after-school activities and keeping up with friends.

From: Next Avenue | August 20, 2020
3 Million Caregiving Youth Need Support

"The most recent Caregiving in the U.S. report by the National Alliance for Caregiving and AARP found that in addition to 48 million adults who are family caregivers, 3.4 million children under the age of 18 are assisting with care.
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... Just as adults might miss work when caregiving, children may miss school. And just as adults may get to work late, children may arrive to school late — and be present only physically, not mentally. Young people who help caregive can experience issues with poverty, prenatal care, premature births, an inability to achieve a third-grade reading level, child abuse and failure to graduate high school."

From: WTOP | August 20, 2020
Virtual Reality: Caregivers Can Become Patients

"The company’s software allows users to peer into the body and mind of someone confronted with aging issues: cognitive decline such as Alzheimer’s, age-related vision and hearing loss, or neurodegenerative diseases such as Parkinson’s and dementia.

The goal is to give users, including medical students, nurses, certified nursing assistants, assisted-living staff members and family caregivers, a better understanding of the challenges facing aging adults with these diseases or impairments through a first-person patient perspective."
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From: The New York Times | August 19, 2020
Bone Talk Podcast: Caregiving Challenges During COVID-19
Join Claire Gill, CEO of the National Osteoporosis Foundation, as she hosts Grace Whiting, President and CEO of the National Alliance for Caregiving (NAC) in this episode of Bone Talk. In addition to her role at the NAC, Grace is on the governing board of the International Alliance for Career Organizations (IACO) and has provided testimony to Congress on caregiving programs. 

The National Osteoporosis Foundation honors their more than 35-year history with Bone Talk, a podcast and blog that shares inspiring conversations. Learn more about Bone Talk and listen to more episodes HERE.
RAISE Caregiver Advisory Council August Meeting

Recording available! Watch a recording of the fifth convening of the RAISE Family Caregiver Advisory Council August meeting, which took place on August 12, 2020 via webinar. Lance Robertson, ACL Administrator and Assistant Secretary for Aging expressed gratitude to the members for the progress they have made so far on drafting the Report to Congress and the National Family Caregiving Strategy. Learn more by watching the recording.
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UPCOMING WEBINARS!

Family Caregiving & COVID-19 Town Hall

August 27, 2020 | 2-3:30 PM EST | Online
Join the University of Pittsburgh’s National Center on Family Support on Thursday, August 27 from 2 – 3:30 PM EST for a community-wide Town Hall discussing how the COVID-19 pandemic is affecting family caregivers. Registration is free, but required.

Earlier this year, the Center released a survey to better understand the impacts of the current pandemic. Their results (which can be found here) found that family caregivers are being more negatively impacted than non-caregivers in many ways – financially, health-wise, and more.

The Town Hall will bring together family caregivers, policy experts, and legislators, providing a space to discuss barriers that family caregivers are currently facing and to understand what programs and supports are needed.
Racial Disparities and Their Impact on Incidences of Dementia and Barriers to Caregiving

August 28, 2020 | 1-2:00 PM EST | Online

This webinar will explore the question of racial disparities and their impact on increasing incidences on dementia, including Alzheimer's disease, in minority communities.

Specifically, panelists will discuss:
  • How racism and discrimination increase risk factors of cognitive decline and dementia in individuals of color;
  • Differences in dementia caregiving in communities of color;
  • The impact of racism on public health initiatives and preventive health measures;
  • Gaps in research on such disparities in dementia; and
  • Outreach strategies to increase minority communities' participation in clinical studies.
UPCOMING VIRTUAL FORUM!
Millennials and caregivers both face unique, but concerning mental and physical health challenges. The already high rates of stress and anxiety experienced by millennials and caregivers are compounded by COVID-19, adding urgency to the need to address their health and well-being. Join the Blue Cross Blue Shield Association (BCBSA) and industry experts for a virtual forum that will shed some light on these challenges and explore how we can support the unique needs of millennials and caregivers during the pandemic and beyond through new, forward-looking solutions.

Single day admission: $149
Full conference admission: $229
Early bird rates ending soon - REGISTER TODAY!
UPCOMING WEBINAR SERIES!

Free Webinar for Cancer Caregivers on COVID-19 and Cancer Care

September 2 and 16 2020 | 2:00 PM EST | Online 

Join the American Cancer Society for Caregiving and COVID ECHO series with faculty from National Comprehensive Cancer Network (NCCN) institutions. This is a 3-part Series with Erin Kent facilitating and Matt Loscalzo, Nick Dionne-Odom, and Rachel Cannady presenting. Registration is required.
NEW CAREGIVING AND PATIENT SURVEYS!

Recruiting Non-paid Family Caregivers Who Also Work At Least 30 Hours Per Week for a Caregiving Study

Do you provide non-paid care for a family member who is aging or has an underlying physical/mental disability or aliment in addition to your own job? Join Baylor University and Texas State University in a new research opportunity to learn more about family caregivers. Baylor and Texas State researchers are seeking participants for a new study on how family caregiving affects work and family dynamics. We are recruiting adults who are working at least 30 hours/week and also serving as a family caregiver in the United States. 

Participation only requires you to fill out two online surveys (approximately 20 minutes each, one month apart between Aug 31st and Oct 4th). In return, each person who completes the study will receive a $25 Amazon gift card with the possibility of earning up to $40 if you also refer other people to participate. Registration will close on August 30th.

Please contact Dr. Matt Quade at [email protected] with questions.
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