October 8, 2020
When I'm 64 Podcast Episode 2:
Lessons from the Coronavirus Pandemic
Listen to the second episode of the Stanford Center on Longevity's When I'm 64 podcast, "Lessons from the Pandemic". In the episode, a caregiver shares what it was like to take care of his 82-year old parents, both of whom contracted COVID-19.

"They can't get a break," said Grace Whiting, President and CEO of the National Alliance for Caregiving, as she joined the podcast to examine how caregivers are confronted with challenges exacerbated by the coronavirus pandemic with Paula Span from the New York Times.  

From: When I'm 64 | September 30, 2020
Udall, Dingell Reintroduce Care Corps Demonstration Act

"U.S. Senator Tom Udall (D-N.M.) and U.S. Representative Debbie Dingell (D-Mich.) reintroduced the Care Corps Demonstration Act to build and strengthen America’s caregiving workforce and help meet the growing demand for caregivers working with seniors and people living with disabilities.
The Care Corps Demonstration Act will address the country’s growing caregiving needs by placing volunteers in communities to provide vital assistance to help seniors and people with disabilities who need extra support to remain in their homes and live independently."

From: Tom Udall Press Office | October 2, 2020
Leeza Gibbons Shares Her Story in 100th Episode of Happy Healthy Caregiver

The Happy Healthy Caregiver podcast celebrated its 100th episode with special guest, Leeza Gibbons. Many know Leeza from the Hollywood spotlight. Leeza is also deserving of the caregiver spotlight as she is a family caregiver. Leeza cared for her mom and her grandma who had Alzheimer's and is caring for her dad who has heart disease. Leeza's passion is her non-profit, Leeza's Care Connection, which helps family caregivers. In this episode of the Happy Healthy Caregiver podcast, Leeza and host Elizabeth Miller talk about boundaries, optimism, self-care, and big dreams.

From: Happy Healthy Caregiver | September 30, 2020
Pain Awareness Month Correction
A correction: In our mention of our participation in Pain Awareness Month in last week's newsletter, we did not mention our partnership with both Pfizer and Eli Lilly on this project. This video series was a joint effort between Pfizer and Lilly. Please take a look at the corrected update below.

Last month, NAC joined Pfizer and Eli Lilly in raising the voices of caregivers and patients dealing with chronic pain in their video series on the impact of chronic pain due to Osteoarthritis. In recognition of Pain Awareness Month, C. Grace Whiting, President and CEO of NAC, sat down with an individual who has OA and her daughter to discuss the impact that chronic pain due to OA can have – not only on someone’s day-to-day activities, but also their relationships. 

Click the link below to listen to their discussion on living with OA.
Patient Priorities Care (PPC) Decisional Guidance
Patient Priorities Care has recently released a new resource for clinicians to use to align their decision-making and care with patients' health priorities. This resource was developed by clinicians, patients, caregivers, health system leaders, and payers.

"The purpose of this decisional guidance is to:
  • Describe a parsimonious set of steps and strategies, consisting of tips and scripts, that address common clinical scenarios likely to be encountered in aligning care with patients’ health priorities (their health outcome goals and care preferences).
  • Describe how to address some key challenges in PPC aligned decision-making."
Now Enrolling! Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE) - Online
The CARE Registry is specifically designed to increase Asian Americans and Pacific Islanders (AAPI) participation and representation in research. This is an opportunity for AAPI to participate in important research that may affect us, our parents, children, and grandchildren. If you identify yourself as an Asian, Asian American and/or Pacific Islander, 18+ years old, can speak and read English, Chinese (Mandarin or Cantonese), Vietnamese, or Korean, and are interested in participating in potential research projects, please check out the red link below!

To register, you will need to complete a brief online survey (or by phone), and receive $10 as a thank you. 
Caregiving Research 2020: Eye-Opening National and Minnesota Findings and Trends

October 15, 2020 | 1:00-2:15 PM EST | Online

Gabriela Prudencio, M.A., M.B.A., the Hunt Research Director at the National Alliance for Caregiving will be joining the Minnesota Gerontological Society to present research from NAC and AARP's Caregiving in the U.S. 2020 study, and to join a discussion on the impact of COVID-19 on caregivers.
Care and Share: Our Big Ideas

October 5-9, 2020 | Online

We need change. We need to create a better way to care for our family caregivers and former family caregivers. The Caregiving Years Training Academy will gather virtually for five days at 1:00 PM EST beginning October 5th to share their big ideas to create change.

The session will be recorded. Registration is free; CEUs available for some health professionals for an additional charge of $20.

Social Isolation and Loneliness

September 28, 2020 | Online

Human beings are social creatures, thriving on connections with others. These connections can help to reduce social isolation and loneliness and lower risk for a variety of physical and mental health conditions. This webinar focused on how social isolation and loneliness affect older adults’ health and well-being, particularly amid the unique challenges of the COVID-19 pandemic. The webinar addressed social isolation and loneliness in the context of Alzheimer’s disease and related dementias, emphasizing the impact of health disparities, and providing information on potential interventions and mitigating technologies.

Watch by clicking the video below.
For more on social isolation during COVID-19, watch this interview from Coronavirus Context with Dr. Terry Fulmer, the president and CEO of the John A. Hartford Foundation. Watch HERE.
Strengthening Support for Family Caregivers: Emerging State Lessons

October 1, 2020 | Online 

This webinar explored promising opportunities for states to better support family caregivers and the key elements necessary to advance new innovations as well as policy and program changes. It featured the experiences of three states — Idaho, Iowa, and Virginia — that are testing new strategies to ramp up family caregiving supports. All three states are participants in the Center for Health Care Strategies’ (CHCS) initiative, Helping States Support Families Caring for an Aging America.
Amgen's Virtual Health Equity 2020 Summit

October 22, 2020 | 10:00 AM - 1:30 PM EST | Online

Join Amgen on October 22nd for a virtual health equity summit to learn insights and best practices to overcome structural barriers to quality medical care among communities of color. 
C-TAC National Summit on Advanced Illness Care

October 27-30, 2020 | Online

The COVID-19 pandemic has brought attention to long-standing problems in our healthcare system which keep the most vulnerable among us from receiving high-quality care. The Summit will tackle pressing issues in serious illness care through the lens of health equity.

Stress Reduction Study for Partners of Early Stage Dementia

If you are married or in a committed relationship, are at least 60 years old, and you live with a partner who has early stage dementia, you may be eligible to participate in a study geared towards lowering daily stress and supporting you in your relationship. Participation involves three short home visits. During the visits, you will be taught a stress reduction technique and be asked for you and your partner to complete a brief survey. Compensation is up to $200 per couple.

To learn more or to see if you are eligible to participate, please contact Joan Monin (203) 785-2895 or email her at joan.monin@yale.edu.
Families Coping Together with Alzheimer’s Disease Study

If you are at least 55 years old and have early stage dementia, and you have a child that is at least 18 years old, you and your child may be eligible to participate in a free and confidential study to understand your experience coping with dementia together. Participation involves one 2-hour interview session and one 2-hour interactive session with you and your child completing tasks together now and one year later. Interview and interaction sessions can be completed over the phone, by mail, or on the computer. Compensation is up to $600 for completing all sessions.

To learn more or to see if you are eligible to participate, please contact Kathleen Williams at (203) 641-5373 or email her at kathleen.williams@yale.edu.