Having trouble viewing this email? View it as a webpage here.
Time for a real talk about mental health in the bleeding disorders community
Patrick James Lynch and Believe Limited, the team behind Bombardier Blood, premiered their new documentary about mental health in the bleeding disorders community, Let’s Talk. Read more about I’m Not Okay: Opening Up About Mental Health and other sessions you may have missed, as well as an overview of some of today’s sessions. Check it out!
Hot Topics: Saturday, August 8
Industry Symposium
Gene Therapy Research: Understanding the Science
11:30 AM - 12:45 PM
Track: For All
Have questions about gene therapy research? Learn about the goals of gene therapy research, possible risks and eligibility criteria from a leading expert, Guy Young, MD; Director, Hemostasis and Thrombosis Program; Children’s Hospital Los Angeles. This interactive live program will answer questions about gene therapy research, including how gene therapy research is designed to work; what different types of gene therapies are being researched; and why are some people eligible for gene therapy trials while others are not.
No gene therapies have been approved for hemophilia A or B or been determined to be safe or effective.
Sponsored by Biomarin
Parent Partnership and Mental Health
1:00 PM - 1:45 PM
Track: Parenting/Caregiver
As a parent or primary caregiver of a child with a bleeding disorder, it's easy to put all of your focus into managing your child's care. Especially during this time, it is important to nurture your relationship with your partner—and to make your mental and emotional health a priority. This session will impart some personal experiences, as well as strategies and tips on how to balance your roles in your partnership and designate time to nurture your mental health and well-being.
PTSD in Chronic Conditions
1:50 PM - 2:35 PM
Track: Adult Men
During this session you will gain a deeper understanding of post-traumatic stress disorder (PTSD) and how it can manifest for a person with a bleeding disorder or a family member. We will discuss how PTSD can affect your personal and professional relationships and ways you can seek both medical and non-medical help.
Women Bleed Too
3:30 PM - 4:15 PM
Track: Women with Bleeding Disorders
Women and girls with bleeding disorders often deal with particular issues and taboos related to diagnosis, symptoms, access to care. In this session, an expert who works to improve quality of life for women and girls with bleeding disorders will discuss essential information on the challenges of getting a diagnosis and accessing care and treatment. In addition, an affected individual will share their experience as a woman with a bleeding disorder.
BDC 2020 Final Night Event
6:00 PM - 7:00 PM
Don’t miss the hottest party on the internet! Our final event will feature a live DJ, interactive games with prizes, and one more chance for us all to be together. We’ll be unveiling the BDC photo mosaic and announcing our raffle winners too. Don’t miss out!
Sponsored by Takeda
Please note that provider sessions will not be available for on-demand viewing. Stay tuned for the enduring program which will be uploaded to NHF’s website in the coming weeks.
Virtual Photo Booth
Just because we aren’t on location for BDC, doesn’t mean we can’t make memories. Try out our virtual photo booth, available during the entire Conference.

Step 1: Take or upload a photo

Step 2: Select a background and move/resize as needed before clicking “save”

Step 3: Upload your photo by using #NHFBDCMOSAIC to Twitter or Instagram. You can also text or e-mail your photo to 201-754-5274 or NHFLAPP@gmail.com. Submission ends at 2:00 PM Saturday, August 8.
If you have family, colleagues or friends that can benefit from attending this Conference, click here to share this event.
Don’t forget to download the BDC 2020 Conference app! Simply search for “NHF BDC” in the iOS app store or Google Play store. Participate in the BDC Scavenger Hunt app game. Look for the Exhibitors’ QR codes in their respective exhibit pages/booth images, scan the code and qualify to win!
Sponsored by Biomarin
Join Us!
Please note, you will need to enter your e-mail address and reference number. Please refer to the logistics e-mail you received on July 30 from NHFbdc@hemophilia.org.
Not registered yet? Don't forget to invite your family, colleagues, & friends!