Hope For Hypothamalic
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Hope for HH was founded by parents, grandparents, and aunts of HH patients because although our HH journeys are unique, we are UNITED in our hope that no one with an HH diagnosis will have to go it alone.

A team of compassionate caregivers and volunteers are working hard to plan a weekend where HH families can not only get the most up-to-date information, but also spend critical time together. More information follows below. SIGN UP NOW for the 2015 HH Family Conference, July 10-12 in Houston, TX.

And read here why one of HH's founders supports the Rare Epilepsy Network and why you should too!

Warmly,
Lisa, Erica, Wendi, Julie, Emma & Ilene
HH Board & Caregivers

MEET HH FAMILIES & HEAR THE LATEST IN HH TREATMENT
Join us for t he 20 15 HH Family Confere nce  July 10-12th 2015  in Houston, Texas! 


An informational conference is being hosted on Saturday by Texas Children's Hospital and will include a full day of talks by top doctors on the latest in HH treatment and research! See the agenda here

There will also be fun activiti es at the hotel on Friday and Sunday to allow families and individuals to meet and share! 

Sunday will also include 4 Workshops to allow individuals to meet in an informal atmosphere to dig deeper into important topics of interest. See the workshops here
Please register here ASAP so we know how many are coming to this FREE event. 

We will be staying at the beautiful Houston Marriott Medical Center right across the street from the hospital. Make your hotel reservations here ASAP
as there is a limited block of rooms reserved for our group at a significant discount! See you in Houston!

Have questions or want more information? Contact 


SPRING TO ACTION - SIGN UP FOR THE RARE EPILEPSY NETWORK

Which HH treatment is right for you?
What are the best supports for school age kids with HH?
How many HH patients have autism, ADHD, or other issues?

Only if ALL HH patients come together and share information will we learn the answers to these important questions. Read why one HH board member is so passionate about the REN hereSpring to Action and register someone you love in April  here. Need help, contact:   Ilene Miller