The MPN Research Foundation is doing our part to advocate for the MPN patient population. The needs of patients are first and foremost in our minds when we choose what researchers to support, have conversations with the
, and raise awareness about these rare blood cancers. Today our Executive Director is in Washington DC to participate in
Rare Disease Week on Capitol Hill
Michelle is learning more about federal legislative issues and their impact on rare diseases, meeting other advocates, and sharing the unique stories of MPN patients with legislators. Look for a report on her experience next week!
There are so many ways you can support our work. We hope you choose to roll up your sleeves and help us today as we add our voices to the rest of the rare disease community.
#BecomeAnAdvocate #ShowYourStripes #RareDiseaseDay #MPNRF