UCSF Neuro-Oncology Gordon Murray Caregiver Program
Summer Newsletter
Greetings Caregivers,

For those who do not know, July 21, 2021 will officially be designated as the first national Glioblastoma Awareness Day. Whether your loved one has a glioblastoma or other brain tumor diagnosis, the recognition of this disease is monumental. The goal of this day is to increase public awareness of glioblastoma, support individuals who are battling brain tumors as well as their families, and encourage a collaborative approach to brain tumor research and improved quality of life. Learn more about how you can take action or share your story here.

We encourage you to explore and take advantage of educational resources and support options available to you as caregivers. As always, please feel free to reach out to our program team if you have any questions or feel you could benefit from additional resources. We are here if you need us!

Warm wishes,
The UCSF Neuro-Oncology Gordon Murray Caregiver Program team
Events in the Spotlight

Head for the Cure 5k Run/Walk
Sunday, September 12 - Chrissy Field, San Francisco

Join us in the fight against Brain Cancer. Registration is open for the SF Head for the Cure 5k Run/Walk this September.
Join the UCSF team OR create your own team of family and friends to come out for a day of fun and connection at SF's beautiful Chrissy Field.
Funds raised will support brain tumor research at a local and national level as well as the services offered by the Gordon Murray Caregiver Program.

Caregiving Discussion Series
Friday, July 30 (10:00am - 11:00am PST) - Virtual

Join BJ Miller, palliative care and hospice physician and founder of Mettle Health, for an informal and interactive conversation on caregiving and what it entails. Topics include the basics of good caregiving, the six "activities of daily living", how to share the care load, what to expect, how to be a good advocate, and coping mechanisms.
What Matters Most: 2-Part Advance Directive Workshop
2 Wednesdays, August 4 & 18 (3:00pm - 5:00pm PST) - Virtual

Redwing Keyssar, RN will facilitate this two-part online workshop that helps attendees:
  • Create a personalized plan to honor their wishes
  • Have their questions answered
  • Complete their new or revised Advance Directive and have it notarized for free
Each participant will receive a free deck of Go Wish Cards and a copy of Redwing's book: "Last Acts of Kindness."
Support Options
UCSF Neuro-Oncology Caregiver Support Group
Monthly on the 2nd Wednesday (6:30-8:00pm) via Zoom

Our caregiver-only support group is an emotional support group facilitated by our neuro-oncology social worker and allows caregivers to focus on their own experience. Open to caregivers of UCSF brain tumor patients.
Also available is our patient & caregiver support group, open to all brain tumor patients and family members.
On your own schedule!

Our peer support program matches a current caregiver of a brain tumor patient with a former caregiver volunteer who can provide emotional and practical support as needed.
Caregivers are matched as best as possible on age, diagnosis, family situation and more.
Other Resources
Explore other Supportive Care Services for patients and caregivers offered here at UCSF Neuro-Oncology
Family Caregiver Alliance
Explore articles, events, and other services offered by the Family Caregiver Alliance
UCSF Neuro-Oncology
Gordon Murray Caregiver Program

(415) 514-5674