Rare Disease Day takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. The National Institute’s of Health’s (NIH) participation aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway to address scientific challenges and to advance new treatments. As part of this global observance, the NIH will be hosting an in-person event featuring panel discussions, rare diseases stories, exhibitors and scientific posters. There will also be a virtual livestream via NIH VideoCast with the event archived for replay afterward. Rare Disease Day at the NIH will be on Tuesday, Feb. 28 from 9 a.m. – 5 p.m. EST. Participation is free and registration is required for in-person or virtual participation.
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