The Pulse - November 2019
The Pulse is a summary of relevant news and articles for Congenital Heart Professionals and highlights:

Featured Science
What's Been Happening?
Congenital Cardiology Today Latest Issue
ACHA Webinar
Congenital Cardiac Nurses Association
Recruitment Opportunities
CHIP Network Partner Organizations
Featured Science
2019 updated consensus statement on the diagnosis and treatment of pediatric pulmonary hypertension: The European Pediatric Pulmonary Vascular Disease Network (EPPVDN), endorsed by AEPC, ESPR and ISHLT.

Commentary from Dr. Charlotte Van Dorn (Rochester, MN), section editor of Pediatric Cardiology Journal Watch: 

Take Home Points:
  • Pulmonary hypertension mortality has been decreasing over the last 2 decades in children and adults, likely secondary to increased awareness, more accurate diagnoses, better risk stratification and early initiation of combination pharmacotherapy.
  • The lower limit of normal mean pulmonary arterial pressure (mPAP) was decreased from 24 mmHg to 20 mmHg.
  • A subgroup of children with idiopathic pulmonary arterial hypertension (IPAH) are positive responders to acute vasoreactivity testing (AVT) and would be classified as PAH long-term responders to calcium channel blockers (CCB).
  • PAH and pulmonary veno-occlusive disease (PVOD)/pulmonary capillary hemangiomatosis (PCH) are now considered a spectrum of pulmonary vascular disease (PVD).
  • Diagnostic methods and variables and their application to pediatric PH have been updated including echocardiography, cardiac MRI, CT and cardiac catheterization.
  • New treatment algorithms, including medications for pediatric PH and PAH-CHD as well as drug-drug interactions are available.

This is an updated, comprehensive and practical guideline for healthcare providers providing care to children and young adults with pulmonary hypertension (PH) and pulmonary vascular disease (PVD). Methodology included an executive writing group consisting of 22 pediatricians, 7 adult congenital heart disease physicians, 1 adult pulmonologist and 1 thoracic surgeon. Specific features of this guideline include new patient groups such as PH associated with congenital heart disease (PAH-CHD), persistent PH of the newborn period (PPHN) as well as PH associated with bronchopulmonary dysplasia (BPD) or chronic lung disease (CLD). The guidelines also include new recommendations for the treatment of acute PH in the intensive care unit (ICU). This is also the first time the challenges of addressing PH in middle to low income regions are addressed.
What's Been Happening?
Pediatric Cardiology Links
Google: CDC
Google: American College of Cardiology
Google: MD Linx
Google: EurekAlert (press release)
Google: Pittsburgh Post-Gazette
Google: Healio
Google: The Cardiology Advisor
Google: MD Linx
Case presentation Is It Just a Murmur? | Part 1
Google: American College of Cardiology

Case presentation Is It Just a Murmur? | Part 2
Google: American College of Cardiology
Case presentation Is It Just a Murmur? | Part 3
Google: American College of Cardiology
Google: The Cardiology Advisor
Feedly: Healio
Feedly: JAMA Pediatrics

Children’s Hospitals Links
Google: News24
Google: Beloit Bulletin
Google: The Jerusalem Post
Google: Becker's Hospital Review
Google: The Boston Globe
Feedly: San Antonio Express-News

Feedly: The Philadelphia Inquirer
Google: Law360
North Carolina
Google: The New York Times
Google: Washington Post
Google: North Carolina Health News
Google: Raleigh News & Observer

Feedly: Tampa Bay Times

Science Links
Google: National Institutes of Health (press release)
Google: Disability Scoop
Feedly: British Heart Foundation

Health Academics and Politics Links

Cardiomyopathy Links
Google: Muscular Dystrophy News
Feedly: Medical Xpress
Feedly: Medical Xpress

Marfan Links
Feedly: The Roanoke Times
Adult Congenital Heart Disease
Google: DocWire News (blog)

General Interest Links
Google: CDC
Google: Spectrum
Google: MD Magazine
Google: Cardiovascular Business
Google: TCTMD
Feedly: American Heart Association
Feedly: University of Alberta
Feedly: Medical Xpress

Google: Ars Technica
Google: The Punch
Google: Science Daily
Feedly: Newsweek
International Links
Google: News24
Google: Beloit Bulletin
Google: The Jerusalem Post
Google: The Malaysian Reserve
Google: Daily Excelsior
Google: CEOWORLD magazine (blog)
Google: The Hindu
Google: The Daily Star
Google: Times of India
Google: THE WEEK
Google: The Punch
Google: News Live
Google: TheHealthSite

Human interest Stories
Google: Daily Mail
Congenital Cardiology Today - Latest Issue
Congenital Cardiology Today publishes the one-of-a-kind Hospital Directory annually. It is a comprehensive list of Congenital Cardiac Care Providers in North America at Hospitals That Offer Open Heart Surgery for Children throughout the US and Canada.
See Direco
ACHA Webinars for Patients and Families
Life After the Fontan 
Monday, November 11, 2019, 7 p.m. – 8 p.m. EST
Presented by Yuli Kim, MD
Empowering Patients to Talk to their Healthcare Team
Wednesday, November 20, 2019, 7 p.m. – 8 p.m. EST
Presented by David Highfill, LCSW, MSW
ACHD and Complementary Medicine
Wednesday, December 4, 2019, 7 p.m. – 8 p.m. EST
Presented by David Gregg, MD
To view previous webinars and see full schedule  click here.
Congenital Cardiac Nurses Association
The Congenital Heart Assessment Tool
The Congenital Heart Assessment Tool (CHAT) is an early warning tool for parents to use at home with their infant between first and second stage of surgery for complex congenital heart disease; enabling identification of normal infant behaviour and detection of signs of clinical deterioration. CHAT provides parents with information about when and who to call for management advice and support, enabling a structured system for articulation of concerns and potentially earlier intervention from the clinical team. This e-learning resource is aimed at healthcare professionals wishing to implement the CHAT within a package of parent preparation before discharge home with their infant.
Recruitment Opportunities
Adult Congenital Heart Disease faculty position at New York University (NYU) Langone Health
The NYU Langone Health Leon H. Charney Division of Cardiology seeks a highly motivated academically-oriented Adult Congenital Heart Disease (ACHD) cardiologist to join our fast-growing nationally accredited ACHD program. Applicant must have a strong commitment to academic medicine and research.

Interested candidates should submit a letter of interest with career goals, 3 references and curriculum vitae via interfolio link :
CHIP Network Partner Organizations
On behalf of the CHiP Network, thank you for reading!


Gary Webb, MD
CHiP Network