This program will provide consumers with the knowledge needed to discuss emerging and current treatment options and have conversations around access to care and insurance trends, as well as recognize World Hemophilia Day.
Medical Symposium: Saturday, April 17th at 3PM
Get information on Insurance Trends with New and Emerging Therapies, learn more about World Hemophilia Day, and get the latest update on NHF’s Plans and Future Directions for the Bleeding Disorders Community.
Presenter Sponsors Education Sessions: April 15th – April 30th
Date: Thursday, April 15th at 7:00 pm
Presenters: Maya Bloomberg, ARNP, MSN University of Miami Hemophilia Treatment Center and Louis, a HEMLIBRA Ambassador
Topic: Give it a Shot: A Different Type of Hemophilia A Therapy
Date: Friday, April 16th at Noon
Presenter: Maya Bloomberg, ARNP, MSN University of Miami Hemophilia Treatment Center
Topic: Meet Jivi
Date: Thursday, April 22nd at 7:00 pm
Date: Friday, April 23rd at Noon
Sponsor: Sanofi Genzyme
Presenters: CoRe Manager, Xaviette Pointer-Kincy and Physical Therapist, Jeff Kallberg
Topic: You Count On Your Joints More Than You Think
Date: Friday, April 30th at Noon
Sponsor: Spark Therapeutics
Presenter: Laureen Temple, Patient Education Lead, Spark Therapeutics
Topic: Understanding Gene Therapy Research and Its Potential Application to Hemophilia
When you RSVP for this program you will receive one zoom link for all sessions, you are welcome to join us for one or for all. » Go here to learn more.
VHF constituents will receive a gas and/or grocery gift card. Value will be connected to the number of sessions you attend with a maximum value of $50.
If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting, please email firstname.lastname@example.org
for more information.