FEBRUARY | 2019
VIRGINIA HEMOPHILIA FOUNDATION (VHF) UPDATES
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VHF Lyman Fisher Scholarship
Award:
One-year award in the amount of $2,000 for a full academic year
Deadline:
May 1, 2019
Eligibility:
The scholarship was designed for individuals living with an inherited bleeding disorder, their sibling or their parents and may be used at any accredited non profit college, university, or vocational/technical school in the United States and is to be applied toward educational expenses. Applicants must have participated in VHF activities and live in the territorial jurisdiction of VHF.
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National Meeting Scholarship
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Individuals and Families Scholarship:
Scholarships will cover airfare/mileage, hotel accommodations, and national meeting registration fees. Not to exceed a total of $2,000. You will be responsible for all meals and other incidentals.
Deadline:
May 1, 2019
Teens and Young Adults (Age 15-24) Scholarship:
Scholarships will cover airfare/mileage, hotel accommodations, and the national meeting registration fee. Not to exceed a total of $1,000. You will be responsible for all meals and other incidentals, as well as the costs of any traveling companion and/or parent or guardian. Individuals under 21 must be accompanied by a parent or guardian.
Application Deadline:
May 1, 2019
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Volunteer and Donor Spotlight: Steve Spasojevich
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Steve Spasojevich is a passionate volunteer and donor with VHF and has been involved since 2008. He serves as
Chair of the Finance Committee, which provides oversight and guidance for the fiscal administration of VHF.
Steve’s entire family volunteers and is a frequent presence at VHF programs—his son Jack has hemophilia A. As Steve puts it: “VHF is very important to my family. We have benefited greatly from the educational programs, family events, and through connections to other families within the hemophilia community. I volunteer and fundraise as my way of showing gratitude for all they’ve done for my family.”
For all the many ways Steve gives back to VHF—we are proud to recognize him as the February 2019 Volunteer and Donor of the Month!
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Family Bleeding Disorders Camp and Camp Youngblood Applications Now Open
Family Bleeding Disorders Camp at Camp Holiday Trails, Friday, April 26 – Sunday, April 28, 2019
A weekend camp for families impacted by an inherited bleeding disorder. This program is designed for families with at least one child living at home who is between the ages of 5 – 17, whose children are camp ready and/or are looking to attend camp in the next two years.
Camp Youngblood at Camp Holiday Trails, July 7 – July 12
A week-long overnight camp for children with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community. Kids enjoy a week of fun and learning with others that are faced with similar challenges and life experiences.
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Summer Internship
Hemophilia Federation of America (HFA) is seeking applicants for a ten (10) week Policy & Government Relations Internship occurring between May and August 2019. HFA will provide leadership, guidance, and a living stipend for two college students with bleeding disorders or students related to a person with a bleeding disorder.
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Gene Therapy with Transplanted Cells Shows Promise in Hemophilia A Mice
Source: Hemophilia News Today, January 28, 2019
Posted: NHF Website, February 1, 2019
Researchers from the University of California (UC), Davis have been investigating whether two genetically engineered cell types could be customized for long term therapeutic benefit in individuals with hemophilia A. To this end, Aijun Wang, PhD co-director of the surgical bioengineering laboratory at UC Davis and his team treated hemophilia A mice subjects with this unique gene therapy.
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*Sponsorship of 2019 events is still available, for more information contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643*
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With this event we hope to provide consumers with the knowledge needed to discuss new and current treatment options, to discuss the ins and outs of clinical trials, and to have conversations around insurance barriers to treatment.
When: Saturday, March 9
Where: Virginia Crossings Hotel Tapestry Collection by Hilton, Richmond (Hotel Accommodation Assistance is Available)
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Community Event - Indoor Rock Climbing
Get active with your bleeding disorders community and join us to learn more about the health benefits of indoor rock climbing! This fun physical activity engages participants in overcoming perceived limitations, increasing self-confidence, recognizing personal strengths and limitations, and examining goal achievement. There is no minimum age or weight restrictions to try out climbing, they have a variety of equipment that can fit all shapes, sizes, and physical abilities. Lunch will be provided.
When: Sunday, March 10th
Where: Peak Experiences Richmond
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Join VHF at our annual signature spring benefit. Attendees will come together to celebrate and support the inherited bleeding disorders community during this special afternoon of cocktails, hors d’oeuvres and a fabulous live and silent auction. Open to all attendees age 21 and up.
When: Sunday, April 14 at 3:00 pm
Where: Dewey Gottwald Center, Richmond
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Unite Walk - Registration Now Open!
Join VHF as we UNITE for Bleeding Disorders! VHF is excited to be a part of the National Hemophilia Foundation (NHF) walk program, Unite for Bleeding Disorders. We hope to see many of our amazing friends and supporters there! All are welcome and company and family teams are encouraged to participate.
When: Sunday, October 20 at 11:00 am
Where: Robious Landing Park, Midlothian
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Check out our photos on
Flickr
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