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To Whom It May Concern,
My name is Jennifer Ryan, and I am a second year Master’s Student in the University of South Carolina Genetic Counseling Program. For my thesis research, I am working to survey parents and caregivers of patients with intellectual disability in regard to patients’ experiences with cancer screening.
Patients with intellectual disability have around the same risk to develop cancer during their lifetime compared to the general population, but are screened for cancer at much lower rates. Through my research, I am hoping to gather family and caregiver perspectives and opinions in order to break down barriers to care and to provide resources to these individuals to help them obtain routine screenings.
A poster about my research is attached and the link to complete the survey is: https://redcap.healthsciencessc.org/surveys/?s=L8MX44TYMHFHN3YE.
Thank you for your time and consideration. Please feel free to reach out to me if you have any questions about the project.
Best,
Jennifer Ryan
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