April 24, 2015    
In This Issue
PAS Annual Meeting
Introducing the NHIS-Child Data Query
New Data Resources on Children with ASD and their Families
National Agenda-Setting Process for Child Trauma and Positive Health
New Rural/Urban and Race Sub-groups Available on the DRC
HRSA Release of Home Visiting Data
Explore the DRC Website
We've Moved! Have You Been Trying to Reach Us or 
Dr. Christina Bethell?
 
We are excited to announce that after 17 years in Oregon and 10 years at the Oregon Health & Science University (OHSU), we've moved to the Johns Hopkins Bloomberg School of Public Health (JHSPH), Department of Population, Family and Reproductive Health.  

If you have been trying to reach Dr. Christina Bethell at her previous OHSU email address, you can reach her now at cbethell@jhu.edu, or email the CAHMI at
info@cahmi.org .
Need Technical Assistance or Help Analyzing Data?
Email
info@cahmi.org
or use our " Ask us a Question" feature

Highlighting New Additions to the CAHMI Team
  
Kathleen (Kate) Powers, CAHMI's new Research Assistant, moved back to the U.S. last year after 2 years living in London, where she received her MSc in Control of Infectious Diseases and worked in Education and Outreach for a young people's sexual health charity. She has several years of experience working with children and adolescents in service-based non-profits, and her research background includes work on adolescent sexual and reproductive health and HIV/AIDS. In her spare time, Kate enjoys dance, reading, and exploring the DC/Baltimore area, and is passionate about LGBT rights and issues. She is very excited to work for CAHMI!
  
Learn more about the rest of the CAHMI team here .
Job Opportunities at the CAHMI's DRC
Interested in working with the CAHMI and DRC?
Check out our job openings here at the Johns Hopkins Bloomberg School of Public Health.
If you're interested,
please apply!

Learn More About Other Data In Action Projects

 

The Well-Visit Planner (WVP): Family-Driven Quality Improvement to Promote Child Well Being

We continue to advance our work to engage parents in the quality of their child's well-child visit using the Well Visit Planner tool. We are thrilled to announce that the WVP has been disseminated to all Early Head Start/Head Start programs nationwide, and CAHMI is currently assisting these programs in its implementation through a series of webinars. Additionally, in collaboration with Family Voices, the WVP is currently being disseminated to families and family leaders nationwide via the Bright Futures Family Network and Family-to-Family Health Information Centers.

 

We invite you to give the WVP a try on the WVP website, and learn more and access supplementary materials here. For more information and technical assistance, please contact us at info@cahmi.org.

 

A Focus on County and City Level Data

The DRC team has been working on ways to optimize the use of data from the National Survey of Children's Health to provide actionable data at the county and city level. Look here for a sneak peak at a Baltimore City report on Adverse Childhood Experiences, an example of similar reports we are exploring and creating as we formulate ways to share this data further. 

Attend HRSA's Next DataSpeak Webinar: Vitally Important: Improving the Timeliness of Vital Statistics to Advance MCH
The Health Resources and Services Administration's Maternal and Child Health Bureau (MCHB) is pleased to announce an upcoming DataSpeak program on Vital Statistics and Maternal and Child Health. Vital statistics-the data and health indicators collected from vital records on births and deaths-are an important source of data for answering national and state health questions. Improving the timeliness of these records is essential to making sure they are most useful for monitoring and advancing public health efforts in real time. This presentation will focus on how states are working to improve vital statistics timeliness and data sharing, and how this is helping to inform and improve programs and health outcomes for women and infants.
This event will be held on Thursday, April 30th, 2015, from 1-2pm EDT. Click here to register.                             
About Us
The DRC is a project of the CAHMI
Th e DRC is a project of the CAHMI and is supported by the  
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The Data Resource Center (DRC) will be exhibiting at the Pediatric Academic Societies Annual Meeting in San Diego, CA, from April 25-28, 2015.

Come by Booth #427 to say hello, get new resources on NHIS data and autism data, and participate in a national agenda-setting process for child trauma and positive health!
               
NHIS

Introducing the 2011/12 National Health Interview Survey data query on the DRC!   

We are proud to announce the release of two new data queries on the Data Resource Center website this month!

 

The first of these queries is the 2011/12 National Health Interview Survey data query on children and their families (NHIS-Child), which includes questions on health status, health care access and utilization, and family resources and health care costs. Conducted by the National Center for Health Statistics (NCHS), NHIS-Child contains unique questions about food security, hospital/ER visits, and child mental health questions from the Strengths and Difficulties questionnaire. We are also excited to share that Metropolitan Statistical Area, Rural Urban Commuting Area, and some state-level data is also available for selected indicators.

 

Some data highlights that can be found on the NHIS-Child data query include:

  • Nearly 1 in 4 (22.9%) children live in families who have problems paying medical bills.
  • A quarter of US children live in families who are worried about running out of food.
  • Approximately one in five children visits the ER at least once in a year.
  • 3 out of 4 youth aged 12-17 (73.7%) had a preventive care visit in the past 12 months.
  • Severe difficulties in emotion, concentration, and behavior are two times more likely among poor children than among those in higher income homes (7.8% vs 3.8%).
  • Uninsured children are four times more likely to have an unmet dental care need than insured children.

 

You can learn more about NHIS-Child on our NHIS-Child data portal, including FAQs, fast facts, guide to survey topics and questions, and methodology information. In the near future, we plan to incorporate a codebook that provides SAS and SPSS code to researchers, and an NHIS-Child dataset which includes the measures shown on the NHIS-Child data query. If you are interested in additional NHIS data, we encourage you to check out the data resources we provide on the NHIS Complementary and Alternative Medicine Supplement data portal, and search this interactive data on our data query.

 

Stop by DRB booth #427 at PAS to learn more about the DRC's new NHIS-Child data query, and stay tuned for our release of a NHIS-Child state-level data query for all states plus DC, in fall 2015!

                       
ASD
New Data Resources on Children with Autism Spectrum Disorder and their Families
Introducing a new data query on 2011 Pathways to Diagnosis and Services National Survey      

The growing population of children with Autism Spectrum Disorder (ASD) and their families have unique health, educational, and developmental needs and experiences, distinct from both the larger population of US children and from children with special health care needs (CSHCN). Although there is a wealth of parent-reported data about families' unmet needs, safety concerns, and views about their child's health services, education, difficulties, and strengths, this data has previously been more accessible to researchers with the time, funding, and expertise to work with it.

 

Over the past year, the Data Resource Center (DRC) and Autism Speaks have partnered to make ASD-related data and resources easy to use and accessible to everyone. Data from the Survey of Pathways to Diagnosis and Services (Pathways), conducted by the National Center for Health Statistics (NCHS) and sponsored by the National Institute of Mental Health, was analyzed for inclusion in the DRC website. Data users can now generate data tables and charts on children with special health care needs (CSHCN) with ASD and related conditions on our easy to use, point-and-click, interactive data query.

  

Here are some data highlights from the Pathways survey:

  • 2 out of 3 school-aged CSHCN with ASD use 2 or more treatment or services to meet their developmental needs.
  • Parents of 45.3% of school-aged CSHCN with ASD reported inadequate health insurance coverage.
  • Nearly 1 in 3 school-aged CSHCN with ASD failed to receive all needed treatment and services.
  • Parents of half of school-aged CSHCN with ASD report that their child experiences unhappiness or depression.
  • More than 8 in 10 school-aged CSHCN with ASD have an Individualized Education Program.

To supplement the data, the Data Resource Center's new Pathways data portal provides a variety of user-friendly materials about the Pathways survey, including survey FAQs, an interactive guide to the survey, "Fast Facts," and data briefs about children with ASD and their families. In the future, the Data Resource Center will host a special ASD topic portal, which will include examples of how these data are currently being used in advocacy and research, additional data from the Pathways survey and other national surveys, and new reports and data briefs developed for the next phase of this project. Stay tuned!

 

ACEs
Participate in a National Agenda-Setting Process for Child Trauma and Positive Health
We are excited to use our space at PAS to further our ongoing child trauma and positive health project with AcademyHealth: Promoting Early and Lifelong Health: From the Challenge of Adverse Childhood Experiences (ACEs) to the Promise of Resilience and Achieving Child Wellbeing.

 

The aim of the project is to increase the capacity of children's health services to promote well-being and prevent, recognize, and heal adverse childhood experiences (ACEs) through the expansion of awareness and knowledge as well as increased innovation. We are currently focused on gathering input from researchers, policymakers, community and family leaders, and clinical workers as part of a national agenda-setting process. We invite you to come to DRC booth #427 to sign up to participate in this agenda-setting process via our co-digital software. (If you will not be at PAS but are still interested in taking part in this process, please email us at info@cahmi.org.

 

April is National Child Abuse Prevention Month - please help raise awareness and learn more through joining this process and exploring our resources on ACEs. We look forward to receiving your input to advance the process of promoting health and addressing ACEs nationwide! For more information about this project, please visit www.cahmi.org/projects/adverse-childhood-experiences-aces/ and

www.academyhealth/aces.

  
  New Rural/Urban and Race Sub-groups Now Available on the DRC!      

The Data Resource Center has now made new rural/urban and race (Asian) sub-groups available for two data queries: the 2011/12 National Survey of Children's Health (NSCH) and the 2009/10 National Survey of Children with Special Health Care Needs (NS-CSHCN).

 

Check these sub-groups out now on our interactive data query!

   
       HRSA Release of Issue Brief and State-by-State Data on Home Visiting Programs

The Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) is pleased to announce the release of an Issue Brief and State-by-State Data on the Maternal, Infant, and Early Childhood Home Visiting Program, now available on HRSA's Home Visiting Program website

 

In FY 2014, HRSA-supported Home Visiting Programs in every U.S. State, DC, and five territories served 115,500 parents and children (from birth to kindergarten entry) in 787 counties. Their interactive state data allow users to see how the Home Visiting Program is working to improve family stability, child health and safety, and school readiness. We encourage you to explore and share these new, valuable resources!

  

To supplement your exploration of this state-level data, check out the DRC's interactive state profile page. This page allows for quick snapshot comparisons between national and state performance on key health indicators. Also, keep an eye out for the release of a special Home Visiting portal on the DRC, under-going construction now!

 

Explore What the DRC Website Has to Offer

 

The Data Resource Center (DRC) website provides interactive point and click access to data findings from MCH surveys. We offer a range of resources to help you put data into action.

 

Go to the DRC website to quickly access data findings from your state, learn about the data, get ideas for using data to monitor needs, assess system performance, inform and drive innovations, and get technical assistance at www.childhealthdata.org.

Get ready for our newly redesigned DRC website, coming later in 2015!