Take this FAST ACTION today: This Friday, November 22nd is the final day to take the Externally Led Patient Focused Drug Development (EL-PFDD) Survey!

Thank you to those parents and caregivers who have already filled out the survey! The more surveys we have, the more information we can share to help inform the FDA and key stakeholders of your lived experiences and how you feel about meaningful therapies! It’s critical that we have a strong representation from all ages and genotypes.

Please take the survey by Friday and be the voice for your loved one!

The 17th Global Science Summit brought together over 1,000 in-person and virtual attendees from 55 countries around the world! The weekend was filled with updates from our translational research pharmaceutical partners, and FAST’s staff and global leaders. For those that were not able to attend, check out the recap and catch all of the presentations on our YouTube Channel.

Read our recap of the 2024 Global Science Summit:

Watch all of the presentations now on our YouTube channel:

Looking to attend a FAST Affiliated Science Summit in 2025? Check out these opportunities below around the world:

• FAST Italy’s 1st Science Summit: Feb 14-15, 2025 in Milan, Italy 
• FAST Australia 2nd Congress: Sept 19-20, 2025 in Sydney, Australia 
• FAST Headquarters' 18th Global Science Summit: Nov 7-8, 2025 in Orlando, FL USA

The amazing Reese Moore Photography team brought the Global Science Summit & Gala to life through photos this year in Orlando, FL. Be sure to check them out and feel free to download and share with your friends & family.

See photos:

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