The objective of these monthly meetings is to cultivate relationships among the diverse stakeholders from the mosque-communities by exploring the patient-centered outcomes research (PCOR) engagement principles while highlighting the work of specific community-based organizations that demonstrate these principles in their everyday work. Click here for a complete meeting recording...
Dr. Aminah Al-Deen, one of our guest speakers, discussed "Capacity building within ourselves," where she reviewed how to better synchronize our behaviors to have a more transparent healthcare system which includes clarity and accuracy of the explanation and fairness in the treatment. With a better understanding of patient-centered care, we can make more informed decisions about the best healthcare plans, hospitals, clinical practices, and alternative treatments. Read more about her presentation here...
The advisory committee is developing three separate groups of subject matter experts for data analysis, systems development, and legal. The aim is through specialization we build capacity at different levels and provide an expert lens to team members to improve their systems literacy.
Dr. Kamal Eldeirawi works on CIOGC COVID-19 Task Force work on providing the needed resources for sustainable socio-economic conditions. In the context of transparency, Dr. Eldeirwai reminded us of the need to be humble and admit to not having the solutions when we are unsure of a situation. He discussed the need to use proper language that is best understood by the audience we are addressing. Another key element of transparency during research is to share the type of research you will be completing than the researcher's interests, and sometimes including a second collaborator may be beneficial in completing the research project at the organization.
Ms. Hira Mirza plays an active role in linking grassroots communities to government structures. She shared available resources that will help interested team members stay more engaged with their local communities and faith-based communities. Change requires consistency and numbers for the voices to be heard and create the needed impact. Hira Mirza highlighted our responsibility to address the government with what the Muslim community's needs are because, in most instances, the government does not know what the current state of the communities is and how to best support them.
Mr. Imran Khan discussed how to develop and integrate information systems within the healthcare system to create transparency and capacity building in organizations. He designs information systems with roads, canals, and bridges to build capacity across the healthcare environment. He has worked on migrations, re-platforms, and the engineering of big data into the public cloud. Mr. Khan finds the need to revolutionize our current technology so patient's information can be easily accessed when they change providers. Another important initiative should be in enhancing the EMR technology systems in different organizations for ease of collaboration and the sharing of information amongst providers across the different healthcare systems.
Through these monthly meetings, the EMPART project team aims to build capacity by fostering a culture of transparency to facilitate partnerships across the entire continuum of health care discipline from grassroots involvement in patient-centered research to implementation of systems that work for the patients and their caregivers.