Did you catch our first ever Facebook Live Q&A? If not you can still watch it here. Thanks to Dr. Nathan Fountain, Lisa Soeby, Ryan Brown-Kohalmy and the Epilepsy Foundation for their partnership.

Also, we are excited to welcome five new Medical Advisory Board members below. 

On March 25, grab your sneakers and walk for HH no matter where you are!  

Finally, mar k your calendars now for our 2017 Washington DC Family Forum Dec. 2-3 ( date correction ). Hotel reservations and sign up information coming soon. 



Wishing you a happy spring, 
Hope for HH Board of Directors

walk for HH on March 25

Join us in  Washington, DC for the National Epilepsy Walk or walk  in your home town  on March 25th. No matter where you are - don purple and walk! Snap a picture and post it Hope for HH FB and yours too!

welcome NEW MAB Members
Hope for HH Board of Directors are pleased to welcome 5 new exceptional advisors to our Medical Advisory Board. Collectively they bring expertise in neurology, neurosurgery, genetics, basic research, endocrinology, imaging, and thermoablation. We are delighted to have them on board. Click here for the complete list of advisors. 





Sam Berkovic, M.D.
William David Gaillard, M.D.
Oliver Oatman, DO
Hiroshi Shirozu, M.D., PhD
Jie Wu, M.D., PhD
Director, Epilepsy Research Centre, University of Melbourne, Australia
Chief, Child Neurology Director Comprehensive Pediatric Epilepsy Program, Children's National Medical Center 
Pediatric Endocrinologist, Division of Endocrinology & Diabetes, Phoenix Children's Hospital
Head, Hypothalamic Hamartoma Center, Head, Department of Functional Neurosurgery, Nishi-Niigata Chuo National Hospital
Professor & Director of Epilepsy Research, Barrow Neurological Institute, St. Joseph's Hospital and Medical Center

join hh & epilepsy studies!

Focused Ultrasound, HH adults, 18+
Contact Stacy Thompson to learn more here
Focused Ultrasound, HH patients ages 18-22
More info here
Quality of Life Study, Adults with rare disorders like HH.
More info  here
Sleep Study & Chronic Conditions, Rare Epilepsy Patients
More info here .
 
Rare Epilepsy Network, All HH Patients & Caregivers
More info  here.


save 30% on Pediatric Epi Surgery book

Last chance to order your personal copy of the  "Pediatric Epilepsy Surgery" book with whole chapters dedicated to HH. 
Publisher John Libbey is offering 30% off the list price of the book for HH families. To order yours contact, info@hopeforhh.org by 3/31 at which time our group order will be placed. 

Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?