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Family Voices Washington Update

Washington, DC Update 10/31/23

Legislative Update

The House has a Speaker! And so business resumes. This week, negotiations on the budget bills will resume.

Unwinding of Medicaid Continuous Coverage and the PHE

1.9 million children have lost Medicaid coverage to date in the unwinding.

From the Administration

ACL: Developmental Disabilities Act

The Developmental Disabilities Assistance and Bill of Rights Act celebrates its 60th anniversary this year. The act was originally signed into law by President Kennedy in 1963 and was reinstated on October 30, 2000, by President Clinton. The law as we know it today assures that individuals with developmental disabilities, along with their families, have access to needed community services, individualized support, and more. This ACL webpage has a number of links to different aspects of the law, history and how it is implemented.


ACL Blog: Closing out National Disability Employment Awareness Month

Written by several ACL staff, this blog reflects on the role that employment can play in community inclusion for people with disabilities. The authors touch on topics such as the importance of equal expectations for people with disabilities, competitive and integrated employment, and assistive technology.


SSI: Cost of Living Increase for 2024

The Social Security Administration announced that SSI payments will increase 3.2% in FY 2024. The increase will mean that the maximum federal SSI payment for individuals will reach $943 per month next year, up from $914 currently. The maximum for couples will be $1,415, up from $1,371. Actual payments to SSI beneficiaries could be higher since some states tack on extra. The new amounts will take effect for about 7.5 million SSI beneficiaries nationwide starting Dec. 29, while higher payments will begin for those receiving Social Security in January.


SSI: What Happens when an SSI Beneficiary Turns 18?

When your child turns 18, Social Security will review their eligibility for continued SSI payments based on the disability rules for adults. For more information, please review the publication, What You Need To Know About Your Supplemental Security Income (SSI) When You Turn 18. Did you know there is a page specifically for youth? Check out Social Security’s Youth Resources page.


CMS: Access to Medicaid/CHIP in Rural Communities

Having health coverage is important when it comes to staying healthy, no matter where you live. Reaching children and families who are eligible for Medicaid and the Children’s Health Insurance Program (CHIP) can be challenging, especially in rural areas across the country. An estimated 13.4 million children under the age of 18 live in rural areas across the United States, and kids in these communities are 24 percent more likely than those in urban areas to depend on Medicaid and CHIP for health coverage. Additionally, Medicaid and CHIP cover over 300,000 American Indian and Alaska Native (AI/AN) children nationwide, many of whom reside in rural areas, including on Indian reservations, and may be more likely to rely on Medicaid and CHIP for coverage than other children.

As part of the Connecting Kids to Coverage campaign, the Centers for Medicare & Medicaid Services (CMS) staff and partners will discuss important strategies, resources, and best practices for rural community outreach and enrollment and address health equity challenges in rural communities. Speakers will also discuss the importance of partnerships, provide actionable tools, and share materials from the campaign’s rural health initiative to support outreach.



November 9, 2023, 2-3pm ET | Register here

Other CYSHCN Policy-Related Materials

CHCS: Effective Medicaid Community Advisory Committees

The Center for Healthcare Strategies recently published a report, Beyond a Seat at the Table, as part of their work for the California Department of Health Care Services to launch and sustain its first Medicaid (Medi-Cal) Member Advisory Committee. This MMAC is part of an increasingly common move on the part of state Medicaid agencies across the country.


NOTE: The recent HCBS Access and Managed Care Proposed Rules, if/when promulgated, will require meaningful engagement of patients, families and community in Medicaid Advisory Committees. 


NHELP Fact Sheet: EPSDT

Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) is the mandatory service for Medicaid-eligible children under age 21 that requires state Medicaid programs to cover vision, hearing, dental, and medical screenings and to arrange for corrective treatment that a child needs. To assist advocates, the National Health Law Program (NHeLP) developed a fact sheet that provides an overview of EPSDT, a snapshot of states’ performance implementing EPSDT, and data sources that track EPSDT nationally and in each state. Read the fact sheet


Webinar: Personal/Attendant Care Updates

Speakers from Team Select Home Care and The Unforgotten Families will present a general update on personal/attendant care, including how family members may qualify to be paid caregivers, followed by a Q&A session.


Webinar on November 8, 2023, 10am-11am PST/ 1pm-12pm EST

Register

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Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families--including those of cultural, linguistic and geographic diversity--in order to improve healthcare services and policies for children.



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