As the world continues to face the difficulties of this pandemic, some areas are beginning the initial steps of “reopening”. Still, many in our community continue to face the reality of daily life that even before-COVID-19 was perhaps more challenging and risk-aware than most. Especially at this time, we want our MTM-CNM Family to know that we see you, we hear you, we are committed to you. Too many times the voices of the rare disease community are ignored. Our concerns are brushed aside. Our worth questioned. Our humanity challenged.
For these reasons and many more, we must stand together on the common ground of a fundamental commitment to each other as a family connected by MTM and CNM. We may come from very different backgrounds and places and have very different viewpoints on many issues, yet we must always strive to treat each other with basic compassion and respect, since every one of us knows from personal experience the battles for survival, equality, justice, and acceptance that each MTM and CNM warrior and their family faces on a regular basis.
Our ultimate goal is to be a community connected in a healthy and supportive way. We’d like to provide a safe space for a community conversation this weekend. We want to hear your voices and give you a place to share your thoughts, so that together we can together better understand our community’s needs and support the well-being of all.
We invite you to join us for a Zoom meeting on Sunday May 31th at 7:00 pm EDT. Please send an email to
in advance of the call and the Zoom information will be shared directly with you. Hope you can join us!