MEDIA ALERT
WEAR JEANS FOR RARE GENES

SILICON VALLEY PRIVATE SCHOOL STUDENTS TO HELP SERIOUSLY ILL CHILDREN BY WEARING JEANS TO SCHOOL
Contact: 
Cassie Jimenez, Coastal Kids Home Care, (209) 923-2568
Terry Downing, PRxDigital, (408) 838-0962

WHAT:
San Jose, CA (FEBRUARY 28, 2020) — Students at St. John Vianney school in San Jose will swap their school uniforms for jeans on February 28th in order to help support Coastal Kids, a non-profit that provides in-home skilled nursing care for more than 100 seriously ill Santa Clara County children.

WHO:
Margy Mayfield , Coastal Kids Executive Director
Laura Seminatore , St. John Vianney Principal
St. John Vianney student participants
Coastal Kids patients and their parents

WHEN:
Friday, February 28, 2020
9:00 a.m. – 12:00 p.m.

WHERE:
St. John Vianney School
4601 Hyland Ave.   
San Jose, CA 95127


WHY:
The last day of February is known as “Rare Disease Day” and students at St. John Vianney School in San Jose will be donating $5 each on February 28 in order to swap their school uniform for jeans and support the work of Coastal Kids Home Care.

Coastal Kids Home Care is a non-profit that provides critical in-home services such as skilled nursing, physical and occupational therapy, counseling and palliative care to children with rare genetic syndromes, rare congenital defects and rare childhood cancers.

VISUALS: St. John Vianney students wearing jeans instead of their uniforms to show their support for Coastal Kids. There will be at least one Coastal Kid patient and parent there. Spanish speaking interview subjects will be available.
Claire is one of the children being treated by Coastal Kids. She suffers from the rare genetic disorder Mucolipidosis II (also known as I-Cell disease) and doctors did not expect her to live past her second birthday. Thanks in part to the in-home treatment provided by Coastal Kids, she will turn 12 in March.
Jackson has Metachromatic Leukodystrophy, a rare genetic disorder that affects the brain and the central nervous system. He is on shift care nursing and palliative care services. His family also sees Kate Hulse, AMFT, for bereavement counseling and expressive therapy.