June 2020: Weekly Patient Resources
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Dear Patients, Family Members, and Caregivers:
The outbreak of coronavirus (COVID-19) has become stressful for many people. You may find yourself overwhelmed with the amount of information coming out from multiple sources.
IPRO ESRD Network of New York would like to share some important patient education resources that might be helpful for you, your family, friends, caregivers or others in your community.
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The Network Celebrates Juneteenth!
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In honor of celebrating the beauty of African American culture the Network is sharing the "
Food for the Soul
" Cookbook created by the Northwest Kidney Center.
"
What we eat is an important part of who we are. The recipes in Food for the Soul are about celebrating culture and traditions in a healthier way. These recipes are filled with flavor, so you and your family can enjoy traditions while feeling your best. Use this cookbook for weeknight meals at home, lunches for work day, potlucks, parties, or barbecues
."
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National Kidney Foundation Presents
"
Why Communities of Color Are Affected By COVID-19 More Than Others
: Addressing disparities in diverse populations!
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The National Kidney Foundation, supported by the National Association for the Advancement of Colored People (NAACP) invite you to join:
Why is COVID-19 impacting communities of color more severely? Watch this a Q&A session with Dr. Sylvia Rosas and Dr. Kirk Campbell, moderated by Francesca Weaks, Policy and Research Manager at the NAACP, as they discuss the latest updates on the COVID-19 virus and how it is affecting diverse populations, including:
- Are there genetic and other factors that make communities of color more susceptible to the virus?
- What can people do to address these disparities in care?
Speakers:
- Sylvia E. Rosas, MD, MSCE is a nephrologist and epidemiologist at the Joslin Diabetes Center and the Beth Israel Deaconess Hospital in Boston, MA. She is the Director of the Latino Kidney Clinic at Joslin Diabetes Center. She is an Associate Professor of Medicine at Harvard Medical School.
- Dr. Kirk Campbell is an Associate Professor of Medicine, Vice Chair for Diversity and Inclusion and Director of the Nephrology Fellowship Program at the Icahn School of Medicine at Mount Sinai. He is the President of the New York Society of Nephrology, a member of the Board of Directors of the Nephcure Foundation and a member of the Medical Advisory Board of the National Kidney Foundation of Greater New York.
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NEW YORK STATE CKD CHAMPIONS
V
irtual Thriving...Not Just Surviving
Cultural Arts Showcase
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The New York State Chronic Kidney Disease (CKD) Champions will host
its first Virtual Thriving...Not Just Surviving Cultural Arts Showcase to
exhibit the creative talents of our Kidney Community.
- Share your artistry and show that kidney disease and dialysis are not who you are, but just a part of your life! Kidney care professionals, caregivers, as well as patients are welcome to participate!
- Send an example of your poetry, artwork, photography, arts & crafts (such as embroidery, crocheting and pottery), or performances (such as singing and dancing). Open to amateurs and professionals!
Photos and videos will be posted on our CKD Champions Information and Resources Page: Search for
@CkdChampionsInfo
in Facebook or go to
https://www.facebook.com/CkdChampionsInfo
. You can also find us by using the hashtag
#ThrivingForArt
Photos and videos will be posted during Summer 2020. Send your submissions now! Deadline is June 26, 2020.
Email photos or a video (no more than 2 minutes) and any questions to Aaron Battle or Cecilia Santana at
NYSCKDChampions@gmail.com
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COVID-19 Patient Resources
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New York-Presbyterian Hospital
John Hopkins COVID-19 Basics
- Protecting your Health: Johns Hopkins experts offer best practices for protecting your health, the health of others, and preventing the spread of coronavirus.
- New Cases of COVID-19 In World Countries: Countries around the world are working to “flatten the curve” of the coronavirus pandemic. Flattening the curve involves reducing the number of new COVID-19 cases from one day to the next. This helps prevent healthcare systems from becoming overwhelmed. When a country has fewer new COVID-19 cases emerging today than it did on a previous day, that’s a sign that the country is flattening the curve
World Health Organization
- Advice for the public: Stay aware of the latest information on the COVID-19 outbreak, available on the WHO website and through your national and local public health authority. Most countries around the world have seen cases of COVID-19 and many are experiencing outbreaks.
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Mental Health Resources
Combating Social Isolation, Stress, Anxiety, Telehealth and .....More!
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Mental Health Association in New York State, (MHANYS):
MHANYS is a not-for-profit organization that works to end the stigma against mental illness and promotes mental health wellness in New York State. MHANYS achieves this through training, education, advocacy and policy, community-based partnership programming, and by connecting individuals and families to help.
Resources:
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Network Educational Resources
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Medicare Part D
Medicare prescription drug coverage (Medicare Part D) is an optional benefit offered to everyone who has Medicare. This program provides prescription drugs through private insurance companies that have contracts with the federal government. Unlike the original Medicare program, Medicare Part D is not provided directly by the government.
You can get prescription drug coverage through:
- Medicare Part D Drug Plans (PDPs)
- Medicare Advantage Plans
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Quality Incentive Program (QIP)
The ESRD QIP is a pay-for-performance program created
by the Centers for Medicare & Medicaid (CMS). The Quality Incentive Program is used to promote high-quality services in outpatient dialysis facilities treating patients with ESRD. The QIP determines the way that CMS pays for ESRD treatment; by linking a portion of the payment directly to the facility's performance of quality care measures
.
The ESRD QIP will reduce payments to ESRD facilities that do not meet or exceed certain performance standards. The maximum payment reduction CMS can apply to any facility is two percent.
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The IPRO ESRD Network of New York team is available to offer you support 24-hours, 7-days a week.
Please call our dedicated COVID-19 Hotlines. Patients: 516-209-5626 or Providers 516-209-5578
to discuss positive cases, concerns/needs, reporting questions, or to request support/resources.
We are also accessible to provide technical assistance or guidance during this public health emergency.
Visit the Network's website for up-to-date information on CMS and CDC guidelines, alerts, educational resources, and stakeholder webinars.
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IPRO ESRD Network of New York
1979 Marcus Avenue, Suite 105, Lake Success, NY 11042
Main:
516-209-5778 |
Fax:
516-326-8929
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