June 10, 2019
Disability Policy Consortium Weekly Update

,

The DPC Annual meeting is nine days away.  I hope you will attend.  Speaking of our annual meeting, I have a correction / apology to make.  Last week we listed Howard Trachtman as one of our speakers.  Regrettably, I didn't inform Howard of the date before publicizing him as one of our speakers.  Howard cannot make it to our event because of a previous commitment.  My apologies for the misinformation.

We have several great stories for you this week.  We also have a few new things in our calendar section.  We also have word of a great new loan program available to help pay for Assistive Technology.
 
Until next week, happy reading. 

John Winske
Disability Policy Consortium
DPC News: Join Us for the DPC Annual Meeting  
  
When:  Wednesday, June 19, 2019,  5:30 P.M. - 7:30 P.M.

Where:  Non-Profit Center, 89 South Street, Boston, MA 02111.

5:30  Dinner 

6:30  Keynote Speakers

Anne Fracht and Brian Kremer
Mass Advocates Standing Strong
   
   Business Meeting
   Board Election

If you wish to attend or need reasonable accommodations, please contact Jeff Gentry at jgentry@dpcma.org or 617 542-3822, before June 12, 2019.

If you wish to be considered for the Board of the DPC, please contact jgentry@dpcma.org.
Community News: Worcester State Hospital Imposes Severe Restrictions 

The Western Massachusetts Recovery Learning Community newsletter is reporting that Worcester State Hospital has imposed severe restrictions on residents of  and visitors to the institution.  Visitors are being told that the restrictions are "temporary".  This 30 day "trial period" seems to infer the restrictions may become permanent.  Some have reported they are unable to get a written copy of the restrictions.  You can read more here.
Opportunity:  MassMatch Mini Loans for AT

MassMatch now has a new Assistive Technology mini-loan program which can lend between $100 and $2,000 to borrowers.  The best news is the interest rates on these loans is 0%, as in nada, zip, zero.  You can find out more here.
Net News:  Savings Accounts for Disabled Americans Catch On, But Slowly

This week the New York Times Money Adviser column had an article on ABLE accounts.  Currently one must become disabled before the age of 26.  There is a proposal before Congress which would raise the cutoff to 46 years of age.  You can read the story here.

In related news, last month the Housing and Urban Development (HUD) office finally got around to offering guidance to the operators of affordable housing on how to handle ABLE accounts.  You can find that information here.
Net News: Autistic Boy Had a Meltdown, Employees Simple Act Goes Viral

The Washington Post had a great story about a mom and dad who took their autistic son to Universal Orlando Resort.  When the young lad received the news that his favorite ride was shut down, he had a meltdown.  What makes the story remarkable is that one of the theme park employees, laid down in solidarity beside the young man, and soothed him.  You  can read the story here.
Net News: Ali Stroker's Tony Nomination Puts Disability Center Stage

Rooted in Rights had a very good story about the actress Ali Stroker.  She is a wheelchair  user and has been nominated for a Tony Award for her role in Oklahoma! on Broadway.  If right now you are saying "I don't remember a character in a wheelchair in Oklahoma!," you are right.  There is not, and that is what makes the moment all the more remarkable.  Finally, a person with a disability playing a role normally played by someone without a disability.  Extraordinary.  You can read more here.
Calendar: Help the Disability Law Center Set Priorities   

The Disability Law Center (DLC) is looking for your expertise on the issues you face as a person or a family member of a person with a disability. We will be using the information you provide us for our annual priority setting process.

Tuesday, June 11
11:30 am - 3:30 pm
Worcester City Hall
455 Main Street
Worcester, MA 01608

Thursday, June 27
10 am - 3 pm
Suffolk University - Sargent Hall
120 Tremont Street
Boston, MA 02108

A light lunch will be provided **

Please submit any accommodation requests to Amanda at 617-315-4440 or agasparonis@dlc-ma.org.

RSVPs are encouraged in order for us to have an accurate number for materials and food. You can RSVP by calling Amanda at 617-315-4440 or emailing her at agasparonis@dlc-ma.org.

Visit our 2019 Priorities Page

Take our 2020 Priorities Survey

Disability Law Center
Calendar: Health Care Advocacy: A Central Focus of the Movement for LGBTQ Equality & Liberation

When:  Monday June 17, 2019, 6 pm

Where:   Fenway Health, 1340 Boylston St. Boston, 10th floor auditorium
 
Advocacy for culturally competent, affirming health care has been a central focus of the LGBT movement since soon after the Stonewall rebellion in 1969. This panel will convene LGBT leaders and experts working in health care, research, and advocacy to discuss the role of health care advocacy in LGBTQ community organizing, both over the past half century and in the future.
 
Confirmed panelists (in formation):
  • Jennifer Potter, MD, Co-Chair of the Fenway Institute
  • Gary Bailey, MSW, ACSW, Professor, Simmons University School of Social Work and School of Nursing and Health Sciences
  • Stewart Landers, JD, MCP, Senior Consultant, John Snow, Incorporated
  • Grace Sterling Stowell, MA, Executive Director, Boston Alliance of GLBT Youth
  • Gary Daffin, Executive Director, Multicultural AIDS Coalition
Moderator:
  • Sean Cahill, PhD, Director of Health Policy Research, Fenway Institute
Sean Cahill, PhD
Director of Health Policy Research
The Fenway Institute
126 Brookline
1340 Boylston St.
Boston,  MA  02215
Office:  617.927.6016
www.thefenwayinstitute.org
Calendar: City of Boston Community Forum on Disability Issues

When:  Friday, June 28, 2019,  2:00 pm - 4:00 pm

Where: Suffolk University Law School, 
120 Tremont St, Boston, Massachusetts 02108

Do you have concerns, questions, or comments on a disability issue in Boston?

We want to hear from you!
  • Provide input to the City of Boston's Annual Accessibility Agenda
  • Hear updates from Disability Commissioner Kristen McCosh
  • Meet members of the Boston Disability Commission Advisory Board
  • Make your concerns about accessibility known to City Officials
  • Network with Disability Community Friends over Free Food & Drinks
ASL and CART have been requested for this event.

To request an accommodation, contact us by June 14th at:  disability@boston.gov or call 617-635-3682 / 
617-635-2541 TTY

Pre- Register and request accommodations online.

* Pre-registration is not required to attend

ASL and CART provided.

Calendar: Deaf and Hard of Hearing Night at Fenway Park  

When:  Wednesday, September 4, 2019, 5:40 P.M.

Where:  Fenway Park, of course
(Boston Red Sox vs Minnesota Twins

Tickets are now available.
To buy tickets; go to
https://groupmatics.events/event/Deafhoh2019

Deaf social at Sam Adam's Deck from 5:40 pm to 7 pm.

There will also be a pre-game ceremony honoring members of the Deaf community prior to first pitch.

ASL interpreting will be provided at the pre-ceremony, the National anthems and the 7th inning song by the Deaf community members.

If you need any reasonable accommodations, contact Gen Davidson at gdavidson@redsox.com
or 617-226-6285

Each ticket bought via the link includes a $5 donation to be split between DEAF, Inc. and Our Deaf Survivors Center, Inc.!

Buy tickets and support ODSC, Inc and DEAF, Inc.

Thanks!!
In This Issue
DPC Needs your Help!!! 
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Make check or money order payable to:

Disability Policy Consortium
11 Dartmouth Street
Suite 301
Malden, MA 02148
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