The Paul K. Longmore Center at The Arc logo, with the tagline Knowledge | Inclusion | Power and San Francisco.

Hello, Community! Welcome to the August newsletter from the Paul K. Longmore Center at The Arc San Francisco.


This month, we have four offerings for your information and enjoyment. 


First, Your Advocacy in Action outlines why August is a good month to contact your congressional representatives.


Next, Media Worth Mentioning spotlights the poignant, authentic film Color Book.


Then, Books We Cannot Wait to Read shares an excerpt from Denise Sherer Jacobson’s upcoming book My Camp Jened Summer; the next chapter in the Crip Camp story. 


Finally, Calling All Disabled Creatives and Event Organizers extends a request to the disability community for information about future projects. 

Your Advocacy in Action

A crowd holds up a large sign that reads “DISABILITY RIGHTS ARE HUMAN RIGHTS” outdoors, with trees and other people visible in the background.

Every August, members of Congress return to their home districts to meet with the people they represent. This is a great time to share your views, ask questions, and push for action. Legislators schedule town hall meetings and other community events throughout the month.  


You can Find Your US Representative here. Check their website for a full calendar of events.  


There are so many issues facing the disability community right now. A few current issues include funding cuts to Medicaid programs, strict new work and reporting requirements, federal changes to Special Education, and proposed threats to the Americans with Disabilities Act (ADA). 


Important decisions are made at all levels of government. State and local leaders make decisions every day that impact the lives of people with disabilities. Find out what is happening in your state and town. 


If you cannot attend an event, consider sending a message through the online portal. Government officials are accountable to their constituents. Your voice, your concerns matter.

Media Worth Mentioning - Color Book

Those of us with disabilities know that good representation in film can be hard to find. The film Color Book, available on Netflix, is a beautiful, rare exception to this rule.

Promotional TV poster showing two men in conversation, seated side by side, with the words “COLOR BOOK,” “ONLY ON,” “NETFLIX,” and “JUNE 19” over a dark background.

The poster above for Color Book shows a father and son smiling at each other in a black-and-white image.


The film tells the poignant story of Lucky and his son Mason adjusting to life after the sudden death of their wife and mother. Mason authentically portrays an eleven-year-old boy with Down syndrome. 


In the film, we witness Lucky and Mason grieve, find joy in one another, and take a harrowing daylong trip on public transportation to an Atlanta Braves baseball game. Mason’s challenges with Down syndrome are not the sole focus of this film. Instead, these challenges are woven into the larger themes of community, family, racism, and parental love. 


If you watch Color Book, let me know what you think.

Books We Cannot Wait to Read - My Camp Jened Summer

Denise and fellow campers at Camp Jened.

The accompanying photo on the left shows Denise and other campers gathered together at Camp Jened.


As summer winds down, we are dreaming of starry nights around a campfire. In 2020, the revolutionary documentary Crip Camp told the story of how Camp Jened in New York ignited the disability rights movement and the independent living movement.  


The Crip Camp story continues. Denise Sherer Jacobson’s upcoming book, My Camp Jened Summer, chronicles her time at camp and the lasting impact of those summer days. In the following preview, Denise shares a sneak peek inside that pivotal summer and her motivation for expanding this story.  

Three people posing together indoors, smiling at the camera while seated and standing in front of a dark background with framed items and posters.

The photo on the right shows Denise (left) with camp friends.


"Previous to camp, I had always been told that the feelings and comfort of the nondisabled people around me were more important than my own. I had never had the opportunity to explore my own thoughts, feelings, and identity. But camp gave me the opportunity to bust out of the box that others wanted to keep me in. I uncovered the potential of my own voice, and discovered that I was a full human being, who got be playful, rambunctious, and even desired exactly as I was. I experienced the enchantment of first love and the despair of first heartbreak. 

 

I began to view disability in a new way. It wasn’t this big dreadful albatross that no one wanted to acknowledge or understand; disability was simply a part of who I was. More than that, I would come to embrace my disability as instrumental in helping me become who I could be when I returned home from that summer with an expanded perspective. This perspective liberated my spirit and also helped me begin to recognize others as people beyond their disabilities—and that was only the beginning. After having my first taste of belonging, I would never be satisfied with less. 

 

Parts of the impact of Camp Jened have already been introduced to the world. In 2020, Netflix released Crip Camp: A Disability Revolution, one of the first films signed under the Obamas’ Higher Ground production company. The documentary has been enormously influential, receiving critical acclaim and a slew of national and international awards, including a Peabody and an Academy Award nomination, and was the opening film at Sundance 2020, garnering the Audience Favorite Award. The film awakened audiences’ awareness of the beginnings of the Disability Rights Movement. It chronicles the movement’s history, struggles, setbacks, and successes.  

 

Five years later, people continue to crave more of the personal stories; when I meet people as I am teaching and speaking about disability consciousness, people always ask me to share more about my individual experience. When I come away from those interactions, I’m struck by the power of personal narrative. 

 

As I said in Crip Camp, "You can make all the laws you want, but until you change attitudes, those laws won't mean much." And you can see those laws unraveling today because people still hold on to their fears of "the other"--whether it's in reference to disability, race, gender, sexual orientation, or any other marginalized group. My story has the power to make readers explore their own belief systems and challenge the way they see both themselves and others, helping them grapple with the fears that disability brings up in each of us so we can nurture a more accepting and compassionate society."

*Stay tuned for the publication date of My Camp Jened Summer!  


**Denise Sherer Jacobson is the author of THE QUESTION OF DAVID: A Disabled Mother's Journey Through Adoption, Family, and Life - available on Amazon. 

Calling All Disabled Creatives and Event Organizers!  


We want to highlight more exciting examples of creativity in our community! If you have a project or event you would like to share, email me with a detailed description and images. Please include image descriptions. 


Send event information at least two months before the event date.  


We are eager to see your work!  

Thank you for being part of this journey.


With gratitude,

Melissa Crisp-Cooper

Associate Director of Advocacy

The Paul K Longmore Center

The Arc San Francisco

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