UNDERSTANDING HH & COMORBIDITIES
HH is a complex syndrome. Our patients and their caregivers are navigating seizures as well as other symptoms or what are commonly referred to as "comorbidities."  

Do you know what your HH comorbidities are? 
Are you getting the specialty care you need for all of the symptoms of your HH? 

To educate our families, help improve your understanding of HH and all of its impacts, and improve communication and care with your doctors - be sure to read our recent blogs explaining  comorbidities generally and endocrine comorbidities  specifically. Thanks to Hope's content team for their great work. More topics coming soon. 

HOW TO MINIMIZE THE TOLL OF CAREGIVING
Hope for HH joined with several other rare epilepsy organizations to  present a three part series on the toll of caregiving in parents of children with medical issues.  If you missed the LIVE webinars, you can catch two of them at your convenience at the links below, plus one more to go live.

Toll of Caregiver Trauma, Webinar 3 coming up on May 13 @ 5 PM PST. Join here

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What other information would you like? 

MEET DEDICATED HH CLINICIANS & RESEARCHERS





More than 50 HH and other experts will travel from around the world to Washington DC in September 2019 for the 4th International Symposium on Hypothalamic Hamartomas. Click the photos above to meet 4! The Symposium is organized by Hope for HH every 3 years and targets medical professionals including researchers and clinicians to create an opportunity for them to exchange information, network, focus on HH priorities, and strategize new opportunities for HH.  We are still looking for financial sponsorships for this critical meeting. Interested? Please contact Ilene


GOT TEE? FIND NAME? POST PIC!
Eli found his name on the 10th Anniversary t-shirt at the National Walk for Epilepsy in DC! Be sure to get your 10th Anniversary T-shirt. The deadline is May 12th. Order yours here. And post your photo to Hope's facebook of you and your name! 


MEET HH HEROES!

Thanks for the update on JoJo's journey 8 years later. 
Read more insights and advice here

Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

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