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As you know, the FH Foundation is all about improving the care of those with Familial Hypercholesterolemia (FH). 

 

We think it is simply unacceptable for 90% of individuals with FH to go undiagnosed. We are committed to changing the status quo and turning the current FH statistics on their head. People with FH have approximately 20x the risk

of having early heart attacks. Heart disease is still the #1 killer of women and men across the globe. Those of us with FH stand at the front line in the fight against the heart disease. 

 


GLOBAL FAMILIAL HYPERCHOLESTEROLEMIA SUMMIT:

AWARENESS TO ACTION

(September 18 - 19, 2013)


 

 

To address Familial Hypercholesterolemia as a public health issue, the FH Foundation convened our first FH Global Summit. We brought together researchers and clinicians in the field of FH from every continent (except Antarctica!). In addition, we were joined by leaders from the CDC, the National Heart Lung and Blood Institute and the most important stakeholder group - FH patients! 

 

For those of us in the United States, the three most important takeaways were:

 

Lack of awareness and in depth understanding of FH!

 

Most genetic conditions have a specific diagnosis code, but FH does not. This discourages accurate diagnosis and contributes to making FH invisible. FH is vastly underestimated in terms of prevalence and severity by most medical practitioners. 

 

FH is invisible and research is dramatically underfunded!

 

Most policy makers have never heard of FH even though it is significantly more common than Type 1 Diabetes and Cystic Fibrosis.

 

There is a lack of data about FH in the United States!

 

In order to address these and other issues, we need more data about the prevalence and burden of FH in the US.

 

Your voice and your experience of living with FH are key to bringing about change! Become part of this important movement by joining the CASCADE FH Registry™. 
 
At the beginning of 2014, we will be publishing a condensed version of the FH Summit online. We will also be publishing a call to action paper in a peer reviewed medical journal. More on that soon! 

 

What else have we done for you lately?


Created the first ever animated video to explain FH. 

Check it out!
 FH : A Story of Hope
FH : A Story of Hope

PLEASE USE THE LINKS BELOW TO TAKE ACTION TODAY!

DO YOU HAVE FAMILIAL HYPERCHOLESTEROLEMIA? 

Join the CASCADE FH Registry >

  

 

DO YOU TREAT PATIENTS WITH FAMILIAL HYPERCHOLESTEROLEMIA?
 

  

DO YOU WANT TO HELP?
 EIN: 45-4597425
Phone: 626.465.1234 | Fax: 904.321.7610 | info@thefhfoundation.orgwww.theFHfoundation.org
Copyright � 2013. All Rights Reserved.