The HH Survivors Facebook page continues to field many questions from families about things like the best meds for anger outbursts and any side effects families have observed on Bazel. Your individual replies and experiences are key toward informing other parents.
Capturing this same information in a registry like the Rare Epilepsy Network - will help researchers identify trends and patterns that might otherwise be missed!
PLEASE sign up for the REN TODAY Need help? We are standing by to help you - contact
. Hope for HH was featured in the REN Newsletter. Check it out here.