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What’s being done to keep our products safe?
With major product recalls in the past two years, the safety of our medications has never been more important. Mark Skinner, JD, Nathan Schaefer, and Johanna Gray covered what is being done to protect the health of our community. Discover more about Blood and Product Safety and others you may have missed, as well as an overview of some of today’s sessions. Check it out!
Hot Topics: Wednesday, August 5
Industry Symposium
The Path Forward: Importance of Healthy Lifestyles
5:30 PM - 7:00 PM
Track: For All, Industry Symposium
During this symposium, we will discuss the importance of healthy living in people with hemophilia, including weight management. We will explain how small changes, such as managing portion sizes and engaging in the right physical activities, can improve the overall health of people with hemophilia. Information on a new treatment option for hemophilia A will also be presented.
Sponsored by Novo Nordisk
Chapter Leadership Networking Hour
6:00 PM - 7:00 PM
Track: Chapters
Chapter leaders, please join us at the Old-Fashioned Watering Hole for a fun and engaging networking hour to connect with your peers from across the country. Expect some special guests, great music and a sneak peek into the endless opportunities of the virtual world. We look forward to seeing you all there.
Sponsored by Pfizer
OUCH! Tackling Pain Together
7:00 PM - 8:00 PM
Track: For All
NHF’s Medical and Scientific Advisory Council (MASAC) recently approved new treatment guidelines for providers who administer opioids to treat pain in people with bleeding disorders. Come learn about the new guidelines from expert providers and consumers and what they might mean to you.
Provider Industry Symposium
Hemophilia Gene Therapy - Learning from Clinical Trials and Preparing for Clinical Practice
7:00 PM - 8:30 PM
Track: Provider
With the expected approval of the first gene therapy for hemophilia in the next few months, it is important that clinicians are prepared for implementation in their respective hemophilia treatment centers (HTCs). During this 90-minute session, Drs. Steven Pipe and Guy Young will provide an overview of gene therapy for treatment of hemophilia along with an update on clinical trials in hemophilia A and B. They will also discuss what success looks like and how HTCs should be preparing for the advent of gene therapy. The presentation will conclude with a live question and answer session between attendees and Drs. Pipe and Young.
Sponsored by ISTH and The France Foundation
Please note that provider sessions will not be available for on-demand viewing. Stay tuned for the enduring program which will be uploaded to NHF’s website in the coming weeks.
Be a Part of the Picture!
At our Final Night Event, we’ll be unveiling a photo mosaic of all the participants at this year’s BDC, because we are a community, even if we’re not together in person. Upload your photo to #NHFBDCMOSAIC to Twitter or Instagram, text to 201.725.5274 or email: NHFLAPP@gmail.com to add to our portrait of the community.
If you have family, colleagues or friends that can benefit from attending this Conference, click here to share this event.
Don’t forget to download the BDC 2020 Conference app! Simply search for “NHF BDC” in the iOS app store or Google Play store. Participate in the BDC Scavenger Hunt app game. Look for the Exhibitors’ QR codes in their respective exhibit pages/booth images, scan the code and qualify to win!
Sponsored by Biomarin
Join Us!
Please note, you will need to enter your e-mail address and reference number. Please refer to the logistics e-mail you received on July 30 from NHFbdc@hemophilia.org.
Not registered yet? Don't forget to invite your family, colleagues, & friends!