Blood Cancer Awareness Month Update
 We are eager to share what we accomplished on behalf of people living with an MPN during Blood Cancer Awareness Month. With your help we were able to raise awareness for ET, PV and MF. We gained 50 new registrants in our patient registry, myMPN, where we also had 160 surveys completed and we raised over $69,000 to fund MPN research!

We know that the work we do is only possible because of the combined efforts from MPN researchers, support group leaders, physicians, advocacy groups, volunteers, caregivers, and most importantly patients. So thank you for your contribution this September and every day we work together to conquer MPN.
What You May Have Missed
The MPN Patients' Bill of Rights

During Blood Cancer Awareness Month 2018 the MPN Research Foundation launched the MPN Patients' Bill of Rights. The Patients’ Bill of Rights was created to inform the MPN community about core elements that are vital to quality MPN patient care. We believe that it's important to become informed about your disease so that you may advocate for yourself and participate actively in your care. It is our hope that people who receive an MPN diagnosis, whether that be 30 years ago or 30 days ago, don’t feel isolated and afraid but instead feel informed and empowered. Click the link below to read the Patients’ Bill of Rights and it's many resources.
Behind the Mystery: Living with Polycythemia Vera
On September 10th and September 17th the daily morning show  The Balancing Act  at on the  Lifetime  network featured MPN experts Dr. Richard T. Silver, from New York – Presbyterian/Weill Cornell Medical Center, and Dr. Srdan Verstovsek of the MD Anderson Cancer Center, to discuss the latest in patient care and clinical trials for polycythemia vera, as well as the future for those living with PV as a chronic illness. You can watch the segment by clicking the video to the right.
MPN Awareness Day and Match Day!

On MPN Awareness Day we asked you to make a donation in support of MPN research. Inspired by a $5,000 match, our community raised an incredible $28,610 for the MPN Research Foundation. We're truly humbled by this outpouring of support & promise to use these funds wisely in the pursuit of new treatments & a cure for MPN patients around the world.
Thank you, MPN community!
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