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"Community Perspectives on the Return of Research Results and Ownership of Data and Specimens for Brain Tumor Genomic Research"
How do people with low grade glioma (LGG) brain tumors want to participate in research? Researchers, including Bethany Kwan, PhD, and Liz Salmi, AS, studied the ethical values of autonomy, privacy, ownership, and relevance when it came to LGG genomic studies. They found that reciprocity was important to participants and that the research process often did not meet their expectations. Read more. (open access 🔓)
Kwan BM, Barnard JG, Ritger C, Staton E, Perkins I, Gonzalez-Fisher R, Lennox L, Gay N, Johnson K, Verhaak R, Claus E, Decamp M, Salmi L. Community perspectives on the return of research results and ownership of data and specimens for brain tumor genomic research. SSM - Qualitative Research in Health. 2026;9:100741. doi:https://doi.org/10.1016/j.ssmqr.2026.100741‌
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