August 2023 Special Connection

Dear Friends,

It is with both sadness and excitement that I am writing to let you all know that I am retiring as ASCF Executive Director in September. I was one of the founding parents 48 years ago, a volunteer and then employee. I am honored to have led this amazing organization to become an award winning agency helping and supporting parents and children with special needs. I have benefited from working with a dedicated staff and a supportive board of directors. I have learned from a network of powerful and diverse parent leaders who have taught, guided and supported me. I will always treasure their partnership and friendship.

Julie Rikon has agreed to serve as Interim Executive Director as well as HPC Project Director. Under her guidance ASCF will continue its exceptional work. We have strong partnerships with local agencies across many systems who share our vision for our children and families. We have a diverse and talented staff who are focused on assisting families to advocate for their children to reach their full potential.

I am very proud of what ASCF has accomplished. We grew from a small group of parents sharing our concerns for our children to sponsoring programs that meet the needs of children and young adults with disabilities and their parents.

For the past 15 years we have served as a federally funded community parent resource center and will continue that project until 2026. While I will be leaving the Executive Director role, I won’t be leaving ASCF completely. I am available to continue writing this newsletter and help in any way I can in this transition.

Thank you all for being on this incredible journey with me. I would love to hear from you. Take care and never give up.

Fondly, Angela Abdul

Join Our Book Discussion Group

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Join us via Zoom for a discussion on the book: Uniquely Human, a different way of looking at Autism (behaviors) by Barry M. Prizant, PhD. We meet on

Sunday, August 13at 6:30 pm and/or Monday, August 14 at 6:30 pm. Please register by email to: norma@ascfamily.org or julie@ascfamily.org. or phone number 973 728 8744 for the link. Participants must register. You can attend both sessions if you prefer. See you there,

Most States Fall Short In Special Ed, Feds Say

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The majority of states have failed to meet their obligations to serve students with disabilities for multiple years in a row, a new audit shows.

Under IDEA, the U.S. Department of Education must evaluate each state’s performance in providing special education services annually and assign them to one of four categories. The ratings factor both a state’s compliance with the law and outcomes for children with disabilities and their families, officials said.

NJ was one of 22 states that met requirements under the Individuals with Disabilities Education Act for serving students with disabilities ages 3 to 21 during the 2021-2022 school year.

Info is from a July 10,2023 article in Disability Scoop by Michelle Diament. For more information go to

https://www.disabilityscoop.com/2023/07/10/most-states-fall-short-in-special-ed-feds-say/30447/



ASCF VIRTUAL TRAINING

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Come join us to get ready for the start of a new school year. Join our discussion (not Legal information) about Basic Rights.

The sessions will be held on:

Thursday, August 3rd at 10 am and a second sessions will be held on Monday, August 7th at 10 am.  You can attend one or both of the sessions. Please register by emailing:  norma@ascfamily.org or julie@ascfamily.org. You can also call to register at 973 728 8744. We look forward to seeing you.

VIRTUAL TRAINING

LDANJ virtual workshop

Tuesday, August 1, 2023, 7:00 PM-8:30 PM

Get Ready For College: Boot Camp For Students With LD

In this free Zoom workshop, designed specifically for new college students with learning disabilities, students will learn valuable tools and strategies to navigate their college journey successfully. Topics include: time management & organization, how to decrease procrastination, test taking, navigating technology, communicating with roommates & professors, how to connect to mental & physical health supports, and much more! The workshop will also address common academic challenges faced by students with learning disabilities in their first semester and offer tips for self-advocacy as well as an overview of how to navigate disability support on campus. Students will be equipped with a first semester toolkit of proven strategies for success and be empowered to begin their college journey with confidence.

https://ldanj.org/ldanj-events/

Please consider joining LDA today when you register.

What is a Math LD or Dyscalculia?

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Dyscalculia is a specific learning disability with an impairment in mathematics, which can affect calculations, problem solving, or both. It impacts all sorts of numerical tasks and it is inborn, meaning you are born with it. Although there is not yet a generally accepted definition of dyscalculia, the DSM-5 mentions difficulties with number sense, memorization of basic math facts, and accurate and fluent calculation. An estimated 4-7% of students have dyscalculia, so a teacher can expect to have one or two students with this per class.

What are Common Symptoms of Dyscalculia?

Dyscalculia in children usually involves one or more of the following:

 Counting: starting to count later and less accurately than other children their age

 Mentally connecting a number with a size or quantity (number sense)

Effortlessly knowing how many dots are on a dice or dominoes without counting

 Estimating and comparing larger quantities

Memorizing sequences such as the order of daily activities or days of the week 

 Doing basic math: memorizing and applying math facts for addition or subtraction

 Learning multiplication tables: learning it one day and completely forgetting it the next day

Difficulty choosing the calculation for the numbers in a word problem

Needing more time for math work and making mistakes that are far off

Learning to tell time using an analog clock

Math anxiety is very common

To learn what can be done for students go to an article from LDA Of America by Dr. Anneke Schreuder, a Dutch pediatrician and neonatologist.

https://ldaamerica.org/what-is-dyscalculia/

TRANSITION OPTIONS

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After high school: Different ways to thrive

For many young people with learning and thinking differences, high school may be a struggle. There’s also a common belief that a traditional four-year college is the only career path after high school. However, there are many paths that can lead to a happy and meaningful life. Here are the different options for life after high school. A traditional four-year college isn’t the only path to a career. Two-year colleges, vocational programs, and the military are just a few of the possibilities. This article explores this issue.  https://www.understood.org/en/articles/after-high-school-different-paths-to-success

TRANSITION TIP

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A Tip That May Help Your Child’s Transition to Adulthood

As you and your youth plan for the future, consider these tips for a successful transition. You can help your son or daughter

 Expand social and community support networks

Social and community networks are more than fun; they are important tools that help connect people to their community and provide a wider network of support. As children with disabilities become adults with disabilities, they may need support from a variety of sources. Start now to develop helpful social and community support networks for your youth. Who do you know in your family, social group, professional circle, faith-based community, or other area who could help provide social, recreational, work, or volunteer experiences for your young adult? Transition planning that addresses opportunities for social relationships and recreation can build a bridge to new friendships, potential employment opportunities, and a wide range of natural community supports. Consider contacting adults in the community who have the same disability as your son or daughter to learn what kinds of supports they use. Peer mentoring opportunities are sometimes available through disability organizations including Centers for Independent Living (virtualcil.net). Parents may feel there is a risk in allowing their son or daughter to develop new relationships and friendships, but building natural and shared relationships is an important first step for all young adults.

https://www.pacer.org/parent/php/PHP-c107.pdf

Parent Support Groups

Mom Squad Virtual Support Group.

Join this parent group with ASCF and Family Partners on Thursdays, from 6-7:30 pm.

For more information contact Diane Varga at

dvarga@familypartnersms.org  

or call her cell: 862-273-5046.

The Family Support Organization of Passaic County offers support group sessions (virtual and in-person in West Milford) on Tuesdays from 6:30- 8 pm. Contact Nina Reams:

nreams @fso-pc.org or 973-979-0508.

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ASCF Science Club

Join Our Science Club

Saturday August 5, 10 to 11 am

 This is an in person activity for both special needs and typical youngsters. We meet at Highlands Family Success Center, 1801 Greenwood Lake Turnpike, Hewitt, NJ 07421. Join us for some fun. Please call HFSC at 973-506-6575.

RESOURCE

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Medical Transition for Your Child With Special Health Care Needs: A Tip Sheet for Parents

When your youth with special health care needs turns 18, their health care transitions from pediatric to adult providers. The planning for health care transition must begin early to allow adequate time for completion of the process by age 18. Clinics and children’s hospitals and other pediatric facilities generally have a cutoff age, usually 18-21, after which patients must be seen at an adult facility. Transitioning is a complex process, and early planning, by middle school if not sooner, is critical to a successful health care transition. This tip sheet is designed to help you in the planning process, as well as answering questions you may have.

https://www.pacer.org/health/pdfs/HIAC-h43.pdf

Have you had a chance to .......

Check out our Mama Marias podcasts for parents and caregivers of children with special needs of any kind? The Mama Marias want parents to know they are not alone…not alone in the way they are feeling, in the things they are experiencing, and in the things they are dreaming. Click on the QR code on the bottom of this newsletter to our website and clicking on Mama Marias.

From a grateful parent

To ASCF,

My son has benefited so much from the help of ASCF parent consultants. They have helped me get the help that he needs. With the assistive technology, his amazing teachers and of course the hard work we are putting in at home, he has made amazing progress. His report cards got better each marking period with the last marking period being all A’s. In his I ready test he has improved in reading and math. In math he went from testing at a first grade level in September to testing at grade level in April/May. Our children are capable, it might take a lot of work but they can do it. Outside of school he is excelling in basketball and baseball and loves playing with other children. Thank you. A grateful parent

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DISCLAIMER:
The Association for Special Children and Families does not provide or give legal or medical advice.
DESCARGO DE RESPONSABILIDAD:
La Asociación para Niños y Familias Especiales no proporciona ni brinda asesoramiento legal o médico.
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