March 2023 Special Connection

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Dear Families and Friends,

While you have your cup of coffee or tea check out this newsletter chock full of information and trainings for caregivers of babies, children or young adults. If you need more personal help,

please contact us 973-728-8744. .

Your friends at ASCF

We have both English and Spanish speaking parent consultants to help you.

Join Our Book Discussion Group

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You are invited to join us on a Special Journey and exploration of a parent-friendly book on

Sunday, March 19, 6:30 pm.  The book is:

"UNIQUELY HUMAN:

A DIFFERENT WAY OF SEEING AUTISM”

 by Barry M. Prizant, PhD.

 This book is for parents and caregivers who have children with challenging behaviors. They will discuss a different perspective and approach to these behaviors. If you need assistance acquiring the book, please let us know. We look forward to hearing from you.

Please register with Norma at [email protected]

 or text her 973 5341557;

or with Julie at J[email protected] 

or call her at 973-728-8744.

A RESOURCE FOR SPECIAL BABIES

Helpful Hands, the Northeast Regional Early Intervention Collaborative, Inc. (NREIC), is a collaboration of parents and professionals working on behalf of infants and toddlers ages birth to three years old, enrolled in Early Intervention, with a variety of special needs as well as significant developmental delays. They serve families in Bergen, Hudson, and Passaic Counties who need assistance understanding if their child is eligible for early intervention services. They also can guide you on your child's transition to preschool at age 3. Their website is https://nreic.org.

If your child should be walking, crawling, or talking and isn't, call 1-888-653-4463 to determine if your child is eligible for Early Intervention.  For more resources and information, see Family Matters Website:

http://www.thefamilymatterswebsite.org/

RESOURCE FOR ADULTS WITH DISABILITIES

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Do you know what an ILC is?

ILC' s are Independent Living Centers that may provide job coaching, training and other services. ILCs can also help you develop skills to live independently, and they often have information about employers in your area who are interested in hiring people with disabilities. To find other local ILC's go to https://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/NJ


DIAL an ILC Serving Passaic and Essex Counties

This Center for Independent Living is part of a statewide network of non-residential independent living centers designed and operated since 1980 to provide services to individuals with disabilities. They encourage consumers and the community at large to seek involvement in this self-governing organization to the fullest extent.

Services That They Provide: Information and Referral, Peer Counseling Services, Independent Living Skill Programs, Advocacy Services, Facilitating Community Transition, Deaf Outreach Service, Recreation Services, Student Transition Services, Benefits and Work Incentives Counseling, ADA Training and Support

For more info go to https://www.dial-cil.org/dial/

To find other New Jersey ILC's go to https://www.ilru.org/projects/cil-net/cil-center-

SPAN'S VIRTUAL TRAININGS

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Paperwork for Families: Getting Organized

Wednesday, March 8, 2023,  12-1 PM 

Are you overwhelmed by the mountains of paperwork created by your child's school records? Not sure what to keep, what to toss? Want to be better prepared for that next meeting at school? Join us to finally get those papers organized so you can more effectively advocate for your child.

Presented by: Julie Rikon, ASCF Parent Co-Director 

Register: https://www.eventbrite.com/e/paperwork-for-families-getting-organized-registration-430950202657?aff=ebdsoporgprofile

VIRTUAL TRAINING

How We Stand Up to Bullying

March 2,2023 1:30pm ET

Bullying continues to be a serious issue for children of any age – whether they are the ones being bullied, others who witness the bullying, and even the bullies themselves. It includes physical, verbal, or social bullying such as public humiliation. The effects of bullying can be pervasive and long-lasting -- including depression, anxiety, and low self-esteem.

The webinar looks at the challenges facing parents and caregivers with children experiencing bullying, and how to advocate on their behalf. Finally, They will take a look at what happens when the bully might be yours child.

Guest Speaker: Nicole Pratt is the Project Director for SPAN Parent Advocacy Network . Hosted by the National Family Support Technical Assistance Center,

Please Register:

https://www.eventbrite.com/e/family-connections-registration-225319355257?aff=ebdsoporgprofile

SEE YOU AT THE EXPO

ASCF will be at the New York Metro Expo on May 5-7, 2023 at the New Jersey Convention & Expo Center, 97 Sunfield Avenue,

 Edison, NJ 08837

 Test drive the latest product & tech 

Conquer an all-inclusive climbing wall

Consult experts from the disability community 

Push your limits with adaptive activities 

Network with your Expo family

 Get the answers you need

HELPING KIDS LEARN

 Help Your Child Love to Learn

School can be arduous for children who don't show an interest in learning. Some children are naturally more inquisitive and self-motivated than others. If your child doesn't have the desire to do well in school, you have the privilege and responsibility as a parent to help him or her develop a genuine love for learning.

A simple, three-step process can help.

Step #1 - Discover

Ask your child what he likes to do. When he's not in school and no family activities are scheduled, how does he choose to spend his time? Does he have an interest in sports, nature, history, politics or the community? The first step in motivating your child to enjoy learning is to find out what he enjoys. 

Step #2 - Motivate

After identifying your child's interests, use them to motivate him to finish his schoolwork. When he does, reward him with opportunities to engage in the things he enjoys. When he doesn't, withhold fun activities until he does complete his schoolwork. 

Step #3 - Balance

Balance is just as important in a child's life as it is an adult's. Help your child find balance through spending free time with both family and friends. Alone time is valuable but too much of it can be a problem. Keep TVs, computers and electronic devices in the common areas of your home and limit and monitor your child's use of them. 

We all have God-given talents - things we enjoy that come naturally to us. They interest us and we are good at them. Help your child develop those talents and connect with others who have similar interests. 

https://www.boystown.org/parenting/article/Pages/help-your-child-love-to-learn.aspx/

PARENTING GUIDANCE

 How Well Do You Know Your Child?

Living with a child means nurturing, teaching, talking and listening. It means spending time together. Still, no matter how much time we spend with our children there are usually things we don’t know about them. Go to https://www.preventchildabuseny.org/_files/ugd/47d16a_db26f4d18f6b41639fb3d9a0ce92876a.pdf for some questions to help you learn more about your child’s ideas and feelings. After you’ve answered them, ask your child these questions—just a few at a time if your child is very young—and compare the results. Remember to listen to your child’s ideas without correcting or criticizing. And remember it works both ways. Your child might want to ask you some questions! Most importantly have fun

Article from www.preventchildabuseny.org 

ADVOCACY TIPS

IEP Meeting Tips for Parents

IEP meetings can be daunting for parents who are new to the process, as well as those who are familiar with it. Meetings may take several hours, there are a lot of people present, lots of data will be discussed, and quite frankly, it can be hard to hear about your child’s struggles and deficits, though those shouldn’t be the only things discussed.

Go to http://www.handyhandouts.com/pdf/646_IEPMeetingTips.pdf for some tips and tricks to make the most of your child’s IEP meeting.

Article by Ashley Eaton, M.A.T. www.handyhandouts.com • © Super Duper® Publications • www.superduperinc.com

EMOTIONAL DISABLITY

Understanding Emotional Disability in Students

IDEA defines emotional disturbance as follows:

“…a condition exhibiting one or more of the following characteristics over a long period of time and to a marked degree that adversely affects a child’s educational performance:

 (A) An inability to learn that cannot be explained by intellectual, sensory, or health factors.

(B) An inability to build or maintain satisfactory interpersonal relationships with peers and teachers.

(C) Inappropriate types of behavior or feelings under normal circumstances.

(D) A general pervasive mood of unhappiness or depression.

(E) A tendency to develop physical symptoms or fears associated with personal or school problems.” (2)

As defined by IDEA, emotional disturbance includes schizophrenia but does not apply to children who are socially maladjusted, unless it is determined that they have an emotional disturbance. (3)


When to Get Help

Sometimes families can be confused or even unnecessarily embarrassed about getting help. It may be difficult for parents to know what their child is thinking (e.g., sad, angry, lost interest, etc.)

Sometimes families just have indications that something is wrong by how the child is acting. Clues can be:

Frequent temper tantrums

Not doing things they enjoy

Waking up at night 

Needing a routine or doing the same things over and over 

Overeating or extreme dieting

Not being able to sit still or pay attention

 Doing poorly in school

Drinking, smoking, drugs

Not dealing well with loss (such as death in the family)

Trauma (natural disaster, abuse, accident etc.)

Any behavior that is harmful to themselves or others


If the thoughts, feelings, or behaviors are frequent, intense, long duration, or are having a negative impact on anyone . . . it’s time to seek help. Families should know that getting help is a sign of strength, not weakness. Parents are brave in recognizing that there is a problem and trying to fix it. Families also need to realize that they are not alone.

MENTAL HEALTH PUBLICATION

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Children's Mental Health: A National Family Guide

This 26-page guide from the RAISE Center is packed with helpful info about mental health and a multitude of resources for families. Topics discussed include what parents and professionals need to know about mental health, when to get help, diagnosis, medication, supports and services, schools and mental health, state agencies, and much more.

Go to at https://www.raisecenter.org/wp-content/uploads/2022/08/National-Childrens-Mental-Health-Family-Guide-update-2022.pdf

MENTAL HEALTH RESOURCE

MENTAL HEALTH RESOURCE

NAMI National Alliance on Mental Illness 

 NAMI is an excellent source of information and connection on mental illness, including the individual disorders mentioned in this fact sheet. NAMI’s website and toll-free helpline are available in English and Spanish.

Toll-free Helpline: 1.800.950.6264

Website in English: http://www.naminj.org

PARENT SUPPORT GROUPS

Mom Squad Virtual Support Group.

Join this parent group with ASCF and Family Partners on Thursdays, from 6-7:30 pm.

Contact Diane Varga

[email protected]  

or call her cell: 862-273-5046

The Family Support Organization of Passaic County offers support group sessions (virtual and in-person in West Milford ) on Tuesdays from 6:30- 8 pm.

Contact Nina Reams nreams @fso-pc.org

973-979-0508.

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FINANCIAL WEBINAR

Why Financial Education Matters

Monday, March 20th, 2023  at 2 pm ET


Will saving jeopardize benefits? How will employment impact benefits? ABLE account or Special Needs Trust? What is Supported Decision-Making? How to protect against identity theft?

Please join an informative webinar presented by Pennsylvania Assistive Technology Foundation (PATF) on March 20, 2023, at 2:00 p.m. ET.

Recognizing that financial education is the foundation for independent living, everyone needs financial skills to make informed decisions about money. It will address fundamental building blocks and the unique financial education needs of students with disabilities. We will explore PATF’s Cents and Sensibility: A Money Management Guide and the Educator Companion Manual and how these guides can help you make financial education engaging and fun and take a tour of PATF’s online financial education resource, StudyMoney.us and its interactive content, activities, and resources.

Register: https://us02web.zoom.us/webinar/register/WN_hNnnzP5_S8iAwAIz9dclhw

ARC of NJ WEBINAR

Out-of-District Placements

Presented by Hinkle, Prior & Fischer

Tuesday, March 7, 2023  6 to 7 p.m.


Often times, school districts will reconsider a student’s out-of-district placement in favor of local public programs. Parents need to know their child’s rights when services change, are cut back, limited or otherwise modified. In this workshop, parents will learn how placement decisions are made, what the important timelines are in the special education system, and the “Stay Put” provision of the law.

https://register.gotowebinar.com/register/3162184874483241565

ASCF SCIENCE CLUB

ASCF SCIENCE CLUB FOR ALL KIDS

This is an in person activity at Highlands Family Success Center, 1801 Greenwood Lake Turnpike, Hewitt, NJ 07421 on Saturday March 11, 10 AM. There will be a Surprise Topic Please call the Highlands Family Success Center to sign up. at 973-506-6675.

WEBINAR ON OCD

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Understanding & Treating Scrupulosity OCD

March 15, 2023  7:30 pm 8:30 Pm eastern


Presented by Ferdinando Palumbo, MSW, LCSW

Their obsessive and compulsive behaviors, internal or external, are aimed at reducing distress by atoning for wrongdoing or checking if they had behaved in an offensive manner. This presentation seeks to raise awareness about scrupulosity OCD and to learn about the different treatment options available

https://register.gotowebinar.com/register/9117654418795732748

COLLEGE PREP WEBINAR

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Get to Know Your School Counselor: Improving Collaboration to Support College and Career Readiness for Youth with Disabilities

Date: Thursday, March 9, 2023, 2:00-3:00 pm ET

Host: NTACT

This webinar will focus on the nature of college and career readiness supports among youth with IEPs, on 504 plans, and without disabilities.  Practical strategies will be shared for improving collaboration between transition specialists and school counselors in order to support youth with disabilities and ensure their inclusion in schoolwide college and career readiness efforts,

 Go to NTACT , create an account for free, then register for the webinar.

https://transitionta.org/trainings/get-to-know-your-school-counselor 

ASCF'S PODCAST IS HERE FOR YOU

Have you checked out our Mama Marias podcast for parents and caregivers of children with special needs of any kind?

It is called Mama Marias because the two hosts are both named Maria and each has a teenage daughter with special needs. They want parents to know they are not alone…not alone in the way they are feeling, in the things they are experiencing, and in the things they are dreaming. Mama Marias aims to bring families understanding, peace, and continued hope. Check out the over 30 podcasts by clicking on the QR code on the bottom of this newsletter  to our website and clicking on Mama Marias.

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DISCLAIMER:
The Association for Special Children and Families does not provide or give legal or medical advice.
DESCARGO DE RESPONSABILIDAD:
La Asociación para Niños y Familias Especiales no proporciona ni brinda asesoramiento legal o médico.
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