Did you know you’re a superhero?
Seriously! You. Are. A. Superhero.
You believe every kid deserves a chance at life, and when you learned that Sanfilippo Syndrome was taking children’s futures, you ran to the rescue. You donated to Cure Sanfilippo Foundation to help find a cure , so one day kids no longer suffer and die from Sanfilippo. You are helping to give back childhoods. See, super hero stuff.

Thanks to your support, multiple new projects are in development , including a possible clinical trial to treat kids in the coming months. We're also competing to win funding from the Chan Zuckerberg Initiative to expand our innovative approach to patient involvement in scientific research that improves evaluation of therapies. Read the latest FOUNDATION UPDATE for more on what's happening . It’s because of you that this work is even possible.

Through the end of June, the generous support of people like you and the hard work of partner families has raised $631,367 in 2019. Which is amazing and will have such an impact. There's a lot of work ahead to reach our $2 million goal.

On behalf of all of the Sanfilippo families, we can’t say “thank you” enough . Your support lifts our spirits and is the driving force toward a cure.

Glenn O'Neill
Dad, Donor, and President

P.S. See how people like you are helping turn hope for a cure into action below.
Thanks to a devoted aunt of Declan Sink , the first annual Dino Dash 4 Declan in Virginia was a great success, with more than 70 runners and raising nearly $6,200 on a sunny morning.
The 4th annual Ride for Rylan in Silver Point, TN, was a great success, with more than 100 bikes registering for the day's fundraising ride in honor of Rylan Hyder .
Everett Cummings and Liv Jordan celebrate birthdays within days of each other, and their families hosted a dual birthday party and online fundraiser, raising $2,672.
At two weddings this spring, the couple honored relatives with Sanfilippo, Danny Feinour and Reagan McKenzie , by making a donation to Cure Sanfilippo in lieu of favors.
The Dobbs Ferry, NY, high school varsity lacrosse team, led by sophomore Harry Dann Jr., hosted a fundraiser during one of its games on behalf of  Jacob Moon .
During MPS Awareness Week, family and friends of Luke Bittner wore their purple and dined at two local restaurants supporting Cure Sanfilippo Foundation.
Nationwide, Sanfilippo families and supporters hosted Sale2Save lemonade and garage sales on June 15, collectively raising nearly $10,000.
Students of Ms. Darlene Ake's pre-K class at Wewahitchka Elementary School in Orlando, FL, emptied piggy banks and asked relatives for support, collecting more than $600, to honor past students Ross and Meredith .
A fundraiser hosted by a Wells, ME, food truck park on behalf of Spencer Smith , raised more than $8,700. And Spencer was excited to have Sanfilippo brother Jackson stop by.
Bringing awareness the entire week of MPS Awareness Day, Will Byers ' family raised $2,744 with a full schedule of "Purple Week" local events and fundraisers thanks to local supporters and businesses.
Thirty-eight donors, including a last-minute anonymous supporter, helped the Foundation surp ass its $5,000 goal for the annual Midlands Gives 18-hour online giving event, helping local children like Keira , Paisleigh, and Rowen .
Led by super-sibling Grey, the Chapin family hosted its annual Purple Lemonade Stand for Courage, honoring Blair's life and legacy, raising more than $30,000.
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PO BOX 6901, Columbia, SC 29260