August 2019 eNewsletter
This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
Meet FOP Researcher Maurizio Pacifici, PhD

For more than three decades, Dr. Maurizio Pacifici, Director of Orthopaedic Research, Children's Hospital of Philadelphia; Professor of Orthopaedic Surgery, University of Pennsylvania; and Associate Director of the Penn Center for Musculoskeletal Diseases (PCMD) has been conducting biomedical research on how the skeleton grows and forms.

IFOPA Active in Supporting International Meetings in Germany and Russia 

The word international isn't just part of the International FOP Association's name; a commitment to the worldwide FOP community is part of our beliefs and our culture. Through the International President’s Council, the IFOPA supports family meetings and brings the latest in IFOPA programs and services directly to families. 

FOP Fun Day in the Pacific Northwest

On June 2, Nadine Grossmann and her aunt, Mary Ann Hulett, held FOP Fun Day at Mary Ann’s home in Gig Harbor, Washington. Friends and family learned about FOP, enjoyed great food and participated in a fun raffle.

Thank you Mary Ann and Nadine for raising awareness and fundraising to help #cureFOP!