2019 BDSRA Annual Family Conference
We are excited to announce that registration for the BDSRA Annual Family Conference registration is now live!
The BDSRA's signature event each year is our family conference. Last year over 450 family members, children, and researchers attended to learn about patient care, education, and the latest research. As in years past, you'll have access to experts sharing research posters and helping to answer questions, connect with other parents, and attend sessions while medical care is provided for your child, and of course, the SIB program's outings and sessions are always great fun!
The conference will be held at the
Renaissance Denver Stapleton Hotel
. You can learn more about hotel reservation
Because of forward-thinking and generous donors who lost their children to Batten disease, each year, there is a limited amount of stipend funding available for families who need assistance to attend the annual BDSRA Conference. You can apply for a stipend here.
You can read about the fun SIBs outings here!
If you, your employer, a local business, or a friend is interested in helping to fund the conference please visit our sponsorship page.